Choline on the Brain? A Guide to Choline in Chronic Fatigue Syndrome
http://phoenixrising.me/research-2/the-brain-in-chronic-fatigue-syndrome-mecfs/choline-on-the-brain-a-guide-to-choline-in-chronic-fatigue-syndrome-by-cort-johnson-aug-2005
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German musician dies from CFS

Discussion in 'General ME/CFS News' started by Ninan, Mar 29, 2016.

  1. Ninan

    Ninan Senior Member

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  2. Marky90

    Marky90 Science breeds knowledge, opinion breeds ignorance

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    I`m thinking correlation does not imply causation.. People die prematurely with cfs too. I seem to recall studies have showed a very slight heightened risk of heart failure in CFS. However it makes sense that if CFS-pasients e.g. are more prone to autoimmune diseases, that there might be dark figures here

    Well very sad anyway.
     
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  3. Sean

    Sean Senior Member

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    Regardless of why he died, RIP, from a major jazz fan.

    :(
     
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  4. TiredSam

    TiredSam The wise nematode hibernates

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    He died of an unexpected stroke. News reports (Spiegel, Focus, Tageschau) are including in passing a mention of his cancelling all work from November to December 2015 due to "exhaustion", "an exhaustion syndrome", "chronic fatigue syndrome" together with a suspected heart muscle infection, at the time attributed to stress and a virus, but not really dwelling on CFS, or saying that was the cause.

    The Bild Zeitung doesn't even mention CFS, which is probably just as well because when they reported on it last November the comments section was full of stuff like "Exhaustion? He wants to come and work in my factory ..." etc etc.
     
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  5. DanME

    DanME Senior Member

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    Sad story.

    But as @TiredSam already has said, it's not at all clear, that he even had ME/CFS. I have read in serveral German newspapers today, that he suffered from myocarditis, accompanied by severe exhaustion and ultimatly died of a stroke. Strokes are not uncommon among patients with myocarditis.

    Most journalists and doctors over here don't know, what ME/CFS really is and confuse it with depression, burn out, general fatigue, other chronicly fatiguing illnesses, cancer fatigue and so on. So I would take all reporting with a big grain of salt.
     
  6. anciendaze

    anciendaze Senior Member

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    This raises a pertinent question: what kind of testing is required to clearly rule out myocarditis in patients said to have CFS? Since this is a serious disease, and potentially lethal, you need to be sure of this before you prescribe exercise, even if you believe exercise improves CFS as you define this disease.
     
  7. taniaaust1

    taniaaust1 Senior Member

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    Makes me think of Casey Fero a 23 year old who died of the ME/CFS complication of myocarditis (probably due to viral reactivations of ME/CFS). For those who don't know of Casey (his mother too had ME/CFS) http://www.cfids-me.org/marys/cfsacf05.html

    ............

    One of the specialist blood labs who did a study on ME/CFS many years ago, found that most of us (I think it was around 95%) had hypercoagulation of our blood..... so that would tie in with a higher possibility of having a stroke.

    Sadly from what we do know about ME and the issues in it, there appears currently lots of possible complications of it which are going ignored.
     
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  8. Justin30

    Justin30 Senior Member

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    This truely sad whether CFS or not.

    The article posted said CFS.

    Dr constantly warn if you push to hard in the beggining it does permanent damage to the heart. Look at Chenneys work.

    The list of comorbidities for ME are endless.

    Do you think people want to openly admit they have ME/CFS?

    Most Drs on the planet dont believe in it or give you the DX cause they dont know or cant help you....

    Regardless this is sad...
     
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  9. Skippa

    Skippa Anti-BS

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    Aw man, RIP, very sad news.

    What I would ask is, what are the health conditions that lead to a 45 year old dying of a stroke?

    I guess the set of events leading from these could easily mimic CFS or other chronic exhaustion type syndromes, so no conclusions can be drawn.
     
  10. Rvanson

    Rvanson Senior Member

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    Yuppers!

    If you are a man with Chronic Fatigue Syndrome, you might as well be invisible, or dead, to most people. That little "Fatigue" word is the only thing that they hear. They dont care to know about ALL the other symptoms that occur with Chronic Fatigue Syndrome. I mean everyone suffers from fatigue, right? You must be some kind of slacker, in their puny minds.

    In my opinion, its better to tell people you have Myalgic Encephalomyelitis.That way it sounds like something that they can "catch" from you, sending them scurrying off, in fear of their own lives.;)

    Once they observe that you are not in any way "normal", they will ditch you anyhow, so why not put some fear into them before they do so? :cool:
     
  11. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

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    [QUOTE="Rvanson, post: 711318, member: 23691"
    In my opinion, its better to tell people you have Myalgic Encephalomyelitis.
    [/QUOTE]

    I concur. I do not let 'chronic fatigue syndrome' pass my lips.

    I feel that uttering the term gives it credence in the mind of others.
     
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  12. TiredSam

    TiredSam The wise nematode hibernates

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  13. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

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    I recall reading that the average age of death from heart failure for people with ME/CFS was something like 20 years younger that for the aveage population.
     
  14. beaker

    beaker ME/cfs 1986

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    I missed that one. Would you happen to have a reference or at least who did study so I can look it up ? Thanks.
     
  15. halcyon

    halcyon Senior Member

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    beaker likes this.
  16. beaker

    beaker ME/cfs 1986

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