Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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Georgia House Resolution supporting ME/CFS Research--thanks Ryan Prior & Timbre Livesay

Discussion in 'Action Alerts and Advocacy' started by Sushi, Mar 11, 2017.

  1. Sushi

    Sushi Senior Member Albuquerque

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    Unbelievable--this is a first. Passed unanimously! :thumbsup::thumbsup::thumbsup:
     
    Solstice, Jan, Silencio and 37 others like this.
  2. Kati

    Kati Patient in training

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    This is history in the making! Congratulations Ryan and Timbre!
     
    Solstice, Jan, Timbre and 12 others like this.
  3. concepcion

    concepcion Senior Member

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    Wow!!!
    Now we just need to teach people how to pronounce it.
     
    Sushi, trishrhymes, Joh and 2 others like this.
  4. Comet

    Comet I'm Not Imaginary

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    So much gratitude for Ryan and Timbre! Thank you! :cool::)
     
    Solstice, Jan, Timbre and 8 others like this.
  5. Forbin

    Forbin Senior Member

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    There is a certain irony (or poetic justice) in the fact that this resolution (presented by a representative who explains that ME is a physical illness) was passed unanimously... just five miles from the CDC in Atlanta, where Dr. Reeves once held sway.
     
    Jan, Sushi, Snowdrop and 5 others like this.
  6. Sasha

    Sasha Fine, thank you

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    Worth watching just the first thirty seconds for that guy to attempt to pronounce "myalgic encephalomyelitis" and get a cheer from the audience. :)
     
    Jan, Timbre, *GG* and 7 others like this.
  7. *GG*

    *GG* Senior Member

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    Yeah, I like that. Shows that not everyone is of the Scientific mind and experience, but he made a pretty good attempt at pronouncing ME, was not to far off!

    GG
     
    Jan, Timbre, Sasha and 4 others like this.
  8. dangermouse

    dangermouse Senior Member

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    :thumbsup:
     
    Comet likes this.
  9. BurnA

    BurnA Senior Member

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    What does this actually mean?
     
    Jennifer J and Joh like this.
  10. Timbre

    Timbre

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    We hope to use the resolution and the assistance of Rep. Cooper to work with community health agency, medical board and the Medical College of GA to start getting ME taught and addressed, at least on some level. It will be long and slow but that's our hope. We are also hoping it can be replicated in many more states. ME Action will be putting out a guide document in the near future. Thanks y'all.
     
    Jennifer J, TiredSam, Kati and 8 others like this.
  11. Silencio

    Silencio Senior Member

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    Jennifer J, trishrhymes and Joh like this.
  12. Kati

    Kati Patient in training

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    Thank you @Timbre, you may well set the path to many states and perhaps other countries to do the same. Lookimg forward to the guide document in ME Action!
     
    Joh and Jennifer J like this.

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