Hi everyone, My name is Kate and I'm from Ukraine. I've been suffering from CFS for 16 years and I believe that the underlying cause of it is my chronically active HHV 6 (high titres by PCR DNA). In 2013 I eventually found a doctor who I thought would lead me to cure, but instead I started deteriorating after his therapy. He put me on high dose interferons and Valtrex.
After being on this combination for a month I dropped because of severe pain in muscles and constant low graded fever together with running nose and face flushing. Since than, all these "side effects" haven't gone away and I'm living like in a hell not knowing what to do.
Actually I've been reading this forum for a long time and very well acquainted with up to date therapies, doctors approaches etc. The problem is there is no doctor here in Ukraine who would be competent enough to deal with the immune system and I cannot afford seeing Dr Kauffman or Dr de Meirleir. Given the fact I should find the ways to tackle my condition, I decided to start taking generic Valcyte I can buy through alldaychemist without prescription.
Searching for someone's feedback on this generic. Who has already tried it and can say whether it is worth taking or maybe it is worse that the original one and can cause severe side effects? After the treatment described above I also developed autoimmune issues. From what i can infer i have MCAS or MCAD which is regulated with antihistamines. I sincerely hope that Valcyte can rule out both issues - my Herpes 6 and concomitant masto, since it's my last hope.
To be honest, I'm afraid to start Valcyte without knowledgeable supervision so I continue to desperately trying to find a local doctor who would agree to at least monitor my liver-kidneys etc. I'm currently taking probiotics and vitamins, especially active zinc. Tried Lauricidin but it did nothing. Also wanted to try Equilibrant and other russian immune modulators but afraid it will boost my immune system which is not good because of my autoimmune profile. I would appreciate if someone could share his/her thought on my situation and generic Valcyte.
After being on this combination for a month I dropped because of severe pain in muscles and constant low graded fever together with running nose and face flushing. Since than, all these "side effects" haven't gone away and I'm living like in a hell not knowing what to do.
Actually I've been reading this forum for a long time and very well acquainted with up to date therapies, doctors approaches etc. The problem is there is no doctor here in Ukraine who would be competent enough to deal with the immune system and I cannot afford seeing Dr Kauffman or Dr de Meirleir. Given the fact I should find the ways to tackle my condition, I decided to start taking generic Valcyte I can buy through alldaychemist without prescription.
Searching for someone's feedback on this generic. Who has already tried it and can say whether it is worth taking or maybe it is worse that the original one and can cause severe side effects? After the treatment described above I also developed autoimmune issues. From what i can infer i have MCAS or MCAD which is regulated with antihistamines. I sincerely hope that Valcyte can rule out both issues - my Herpes 6 and concomitant masto, since it's my last hope.
To be honest, I'm afraid to start Valcyte without knowledgeable supervision so I continue to desperately trying to find a local doctor who would agree to at least monitor my liver-kidneys etc. I'm currently taking probiotics and vitamins, especially active zinc. Tried Lauricidin but it did nothing. Also wanted to try Equilibrant and other russian immune modulators but afraid it will boost my immune system which is not good because of my autoimmune profile. I would appreciate if someone could share his/her thought on my situation and generic Valcyte.
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