New era for ME/CFS research as top cytokine study attracts media headlines
The immune systems of patients who have recently developed ME/CFS look markedly different from those who have been ill for much longer, according to a major new study from Drs. Ian Lipkin and Mady Hornig at Columbia University. This shift in immune function hadn’t been seen before.
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Gene-Eden-VIR OTC antiviral for EBV,CMV and others

Discussion in 'Antivirals, Antibiotics and Immune Modulators' started by minkeygirl, Mar 3, 2014.

  1. minkeygirl

    minkeygirl Senior Member

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    I was Googling around this morning and ran across this. Has anyone heard of this?

    Study: EBV Can Cause Encephalitis; polyDNA Recommends Gene-Eden-VIR to Target the Latent Epstein Barr Virus
    A study published on November 16, 2013 in the Spanish medical journal Revista de Neurologia found that “Infection by the Epstein-Barr virus (EBV)-either as a primary infection, a reactivation or an active chronic infection-can give rise to several clinical forms of involvement of the central nervous system (1).” polyDNA reviews the literature and recommends Gene-Eden-VIR against the latent EBV.

    http://www.buy-gene-eden.com/index.php

    http://www.prweb.com/releases/2014/01/prweb11462653.htm
     
    heapsreal likes this.
  2. Jon_Tradicionali

    Jon_Tradicionali Senior Member

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    Zogor-Ndreaj, Shkodër, Albania
    Hi Minkey

    Yes I tried it from September to December 2013 at cost of £55 for two bottles (i think)

    I knew it wouldn't work, but wanted to feed my curiosity.

    No symptom change whatsoever. Was initially told it would take 2 months minimum for effect. 4 months i tried it and nothing.... Then was told I needed one year. I said buzz off.

    This is a PR con.

    Don't waste your money.
     
    vli likes this.
  3. minkeygirl

    minkeygirl Senior Member

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    Thanks @Jon_Tradicionali I just ran across it so was curious. It says latent viruses. Don't think mine are latent.

    I'm feeling frustrated since Famvir works great but I think it's really constipating me even at a low dose. I stopped it today and after missing a small dose I'm feeling it.
     
  4. Ema

    Ema Senior Member

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    I think the ingredients themselves may do some good (likely at higher doses though)...but the price for this supp is way out of line for what it is.

    I agree that it is more "marketing" than "research".
     
    minkeygirl likes this.
  5. Andrew

    Andrew Senior Member

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    I've had reduced symptoms taking this. The change was not obvious to me as it was happening, but I realized it when I remembered how I had felt before. This is how they predicted the change would happen.

    The stuff is expensive and not magic. But I would say I had enough improvement to keep taking it. What I don't remember is whether I stopped to see if I got worse again. Maybe I should try that.
     
  6. minkeygirl

    minkeygirl Senior Member

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    I need my money right now to pay for stuff I actually know works so this will have to wait.

    If you try it again, keep me posted on your results.
     
    Iquitos likes this.
  7. chronickiller29

    chronickiller29

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    As to whether this is more marketing than research...

    I think there should be a more fair assessment going on.

    As I said on another thread here:

    To think that clinical evidence, statistics etc. are not skewed in favor of positive results throughout the pharmaceutical industry (and the complimentary and alternative medical industry too) is a bit naïve.

    Don’t you agree?

    With that said, it is worth noting that the study that focused on the effects of Gene-Eden-VIR in reducing viral symptoms in those infected with various chronic herpes viruses, the human papillomavirus (HPV) and certain strains of the hepatitis virus like (HCV), was a post-marketing clinical study.

    This very same sort of study, which used Patient Reported Outcomes (PROS), has been considered legitimate enough by the United States government to approve multiple drugs that are available today. “From the years 1997 to 2002, the FDA approved 23 new drugs based on PRO endpoints only. They include six anti-migraine products (Amerge®, Ax-ert®), several anti-epileptics (Gabitril®, Keppra®), and a variety of other therapy classes (Tamiflu®, Relenza®). (1)

    So, I think some of the statements here are a little harsh ... particularly in light of the fact that Tamiflu, which everyone knows about, was approved using exactly the same sort of study that was used on Gene-Eden-VIR.

    Is everyone going to claim that its study was more "marketing" than "research" ???

    Now, as to whether Gene-Eden-VIR is super effective or not…probably more studies need to be conducted. But when you think about the fact that most natural products have zero studies to back their claims, the fact that the formula of Gene-Eden-VIR has ANY kind of study that does, sets it apart.

    Outside of the issues related to the product, I think the medical community would really do well to begin taking a very hard look at the ideas presented by both Dr. Ewald and Dr. Polansky.
     
  8. Iquitos

    Iquitos Senior Member

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    The link to buy it doesn't work and this is probably why: http://www.fda.gov/ICECI/EnforcementActions/WarningLetters/ucm253333.htm
    The FDA issued them a letter telling them to stop selling it because of it's health claims.

    BUT if one wanted to buy the components as listed, you could get them all at, say, iHerb, for about 68 cents a "serving."

    Not all components were available in the exact amounts listed and some could be split and serve "two servings."

    Shipping not in those calculations but might be free.
     
  9. chronickiller29

    chronickiller29

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    Actually, that's not true.

    The FDA issued polyDNA, the maker of Gene-Eden-VIR a warning letter. This isn't a letter that forbids them from selling. Instead, apparently the company was making certain claims on its website that are forbidden by FDA rules.

    If they removed the offending content from their site...they'd be good to go.

    Specifically, the FDA warning letter said: "it is unlawful under the FTC Act, 15 U.S.C. § 41 et seq., to advertise that a product can prevent, treat, or cure human disease unless you possess competent and reliable scientific evidence, including, when appropriate, well-controlled human clinical studies, substantiating that the claims are true at the time they are made." (1)

    The FDA warning letter was issued in 2011. Since then, the company DID have competent, reliable, well-controlled human clinical studies...and the results of those studies were published in a peer reviewed medical journal in 2013, and another in 2014. (Check out the journal Pharmacology & Pharmacy, here: http://www.scirp.org/journal/PaperInformation.aspx?PaperID=36101#.VP6kLHyUf90 )

    I'm not sure why you said the link to buy the product doesn't work. I went to the link you provided and it does, in fact, work.

    I googled the product, and there are a couple of domains where you can go to buy the product.

    Both http://www.buy-gene-eden.com/index.php and http://gene-eden-vir.com/ seem to work just fine.

    Reference:

    (1) The FDA Warning Letter to polyDNA
    http://www.fda.gov/ICECI/EnforcementActions/WarningLetters/ucm253333.htm
     
  10. Iquitos

    Iquitos Senior Member

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    Yes, I just checked and the page opens now. Yesterday I tried three times at different times of the day and it wouldn't open. When I googled the product, I found the FDA letter but didn't note the date. Sorry for that but when the page wouldn't open I thought that was the reason.

    And their site says it is not offered for sale anywhere but on their site. Do you know what the dosage is? The site shows a bottle with 60 capsules for $43 but I didn't see where they said how many should be taken per day.
     
  11. chronickiller29

    chronickiller29

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    Well, I went to their site and looked it over some more. I didn't see anything specifically about dosage. So, I went and looked at their study.

    It said that during the study, the dosage of Gene-Eden-VIR " was 1, 2, 3, or 4 capsules per day. The duration of treatment was 2 to 54 weeks." (1)

    You mentioned that there are 60 capsules in a bottle, so I would assume that if a bottle lasts for a month, then the dosage would be something like 2 capsules per day.

    You should probably contact their company though to see what they actually recommend.

    Here's the reference:

    (1) http://www.scirp.org/journal/PaperInformation.aspx?PaperID=36101#.VP_4wXyUf90
     

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