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Gcmaf working signs

Discussion in 'GcMAF' started by naoise, Jul 24, 2015.

  1. naoise

    naoise Senior Member

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    Hi

    I'm one month into taking Gcmaf (0.4 of a vial at the moment and will increase every month).
    What I'm wondering is those who took or are taking gcmaf... When you saw signs of was working what were those signs? Also for anyone who finished the treatment are you better now and loving a normal life?

    I'm starting to have more energy and better sleep but don't want to get my hopes up too soon.
     
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  2. john66

    john66 Senior Member

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    I am glad it is helping you. I tried the Maf 878 for a month and it made me worse than I have ever been.
     
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  3. naoise

    naoise Senior Member

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    @john66 sorry to hear that. They do say you can get much worse in the beginning so could that have been the case?
    Yup until this week I was really bad and couldn't function at all. But I'm not getting my hopes up cause this happens with me..I go through phases of feeling good. So will see if this phase ends but I hope not.
     
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  4. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    I think this varies from person to person. For me it was an across the board "bettering" of symptoms--but it wasn't startling or by any means a cure, just that I felt better, had more stamina, etc.
    For those with ME/CFS taking GcMAF, I don't think there is any "finishing the treatment." It seems to be an ongoing support but not something that "heals" ME/CFS.
     
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  5. GcMAF Australia

    GcMAF Australia Senior Member

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    These MAFs can be really strong and people start herxing
    The trick is to start SLOW and start LOW

    In australia some people have to start on about 1 tenth (or even 100th) of the recommended dose
     
  6. xrunner

    xrunner Senior Member

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    I did an overall 12 months on the probiotic maf314. In answer to your questions. The first sign, a couple of weeks into, was improved sleep then after a couple of months a step forward in energy/stamina, this then continued and thirdly my Nagalase normalised. I'm much better now and indeed I enjoy an almost normal life. Best wishes.
     
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  7. Dufresne

    Dufresne almost there...

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    Though some believe GcMAF should be stopped when nagalase normalizes.

    I'm looking for a source. I'd like to start with the easiest to tolerate and cheapest forms, and work my way up from there if need be. I've Lyme and co so I don't expect it'll be an easy road but I think my immune system is rather under-functioning these days and small doses might be just the thing to get it going.

    Is Enlander's 878 still available? Are there other affordable sources?
     
  8. SB_1108

    SB_1108 Senior Member

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    @xrunner - What is your source for the maf314?
     
  9. xrunner

    xrunner Senior Member

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    Hi @SB_1108
    From a doctor in Vienna. However last time (couple of years ago) I spoke to her she had changed supplier and was using a different form of probiotic gcmaf. Now, from what I have read the 314 is sold under the name Bravo. Just to clarify that I haven't had any gcmaf (nor any other treatment) for over two years.
     
    Last edited: Aug 11, 2015
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  10. BenFromNZ

    BenFromNZ

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    Hi @xrunner

    Could you tell me what level your nagalase got down to when you say it "normalized"? I'm just asking because some things I've read indicate concerns about not taking it too low or people end up crashing.

    BTW Hi everyone, my first post here. I've been reading phoenix rising posts for years to get info on treatments but never posted. So I feel like I know a lot of you already. I've had ME/CFS and fluctuated between bedridden and mostly housebound for nearly 10 years. I'm about to order some GcMAF in the next couple of weeks.

    My nagalse levels have been tested through HDR in New Jersey at 3.7 so fairly high and hopeful I will be a good responder. I plan on starting at around 10ng to start with and see how it goes.


    Ben
     
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  11. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    I've been taking injected GcMAF for years and my nagalase went down steadily and has remained at about .65 for quite a while. I experienced no negative effects from continuing GcMAF after my nagalase became normal. The "concerns" come from Dr. Cheney who was administering it at a much higher dose than I have taken, more frequently and sublingually.
    That would be considered high on the scale.
     
  12. BenFromNZ

    BenFromNZ

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    Hi @Sushi,

    Yes, it was from Cheney that I got that idea from. (I realize he is all over the place with things he says though!)

    Is there some thought that taking it sublingually causes less reactions than injection?

    After your nagalase normalized and you continued treatment did your nagalase keep going down or did it remain static after that?
     
  13. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    No idea about how sublinual delivery would affect things but he was dosing it more often than once a week and at 100 ngs. I have been taking 20 - 25 ngs and yes, my nagalase has remained more or less static after reaching the normal zone.
     
  14. BenFromNZ

    BenFromNZ

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    @Sushi Thanks for that. And do you now still take it once a week or have you dropped back the frequency?
     
  15. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Once a week.
     
  16. BenFromNZ

    BenFromNZ

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  17. GcMAF Australia

    GcMAF Australia Senior Member

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    I am assuming NZ may refer to New Zealand
    GcMAF is used at
    www.StBenedictsHealthCare.com
    you probably are already aware of this
     
  18. BenFromNZ

    BenFromNZ

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  19. SB_1108

    SB_1108 Senior Member

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    Mine was 2.90... what is the scale? All I can see is that .95 is the upper end of the reference range.

    I'm still not even sure I understand what nagalase is...
     
  20. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    My lab tests for two forms of nagalase--apparent nagalase activity and effective nagalase activity. I am not sure what the difference is but for the former the range is .5 - .95 nMol/ml/min and for the latter, .44 - 1.29 nMol/ml/min.
     

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