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GcMAF trial

Discussion in 'Active Clinical Studies' started by Jenny, Jun 1, 2010.

  1. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    I am also wondering if it is just BGLI's GcMAF that is getting turned back or all sources. I flew to Europe to see a doctor and brought it back in my luggage. But this is not possible for many.

    Sushi
  2. Eliza

    Eliza

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    I'm astounded by the costs of GcMaf in the US. I'm a patient of KDM in Belgium and I pay far less ...
    vli likes this.
  3. firefly

    firefly

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    I was just down in NYC yesterday to see Dr. Enlander.
    He currently has about 12 patients doing the GcMAF trial. So far (after five weeks) two are doing extremely well, a few others show some improvement, the rest are moving slowly. IRIS has been a factor for some and they have had to lower dosage. He is carefully monitoring kidney and liver function every two weeks.
    Nagalese test results had just come back from Belgium. Seems most patients started with low levels that are now rising. (I'm very sketchy on this last point.)

    I'm considering starting in September.
  4. Overstressed

    Overstressed Senior Member

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    Belgium
    Hi firefly,

    Are you sure about this ?! Normally, it should be decreasing whilst on Gc-Maf...

    Best regards,
    OS.
  5. Rrrr

    Rrrr Senior Member

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    cheney recently said that nagalese levels could rise at first, on gcmaf, and then drop.
  6. firefly

    firefly

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    Hi OS,
    Your version of it is likely the right one. I did not take careful notes on this when he mentioned it, so best to take my recollections with a grain or three of salt.
    All best,
    F.
  7. self

    self

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    Hi Jenny, Im new to this group ,Ive had ME for 28 years. Im very interested in any GcMaf trials . I tried the link you supplied but it is not functional. Do you know anything about the trial in UK? or do you have any contact info for any of the trials you mentioned?
  8. Carla-nl

    Carla-nl Veteran by now

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    Hi Self, Jenny and all, BGLI has a 2-3 day delivery service to the US and they work with any physician that's interested in Gc-MAF. So that can be your GP, Family physician, integrative medicine physician, alternative practitioner, anything like that.

    Cheney has run a trial with their product and it is currently the only version of Gc-MAF commercially available with proper certificates for sterility and activity. See www.bgli.nl for info and ordering. (that is a link that works)

    Click for Cheney's report Compassionate use of Gc-MAF in CFS.

    Carla
  9. Xandoff

    Xandoff Michael

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    I have had no issues getting GcMAF through David Noakes. I have ordered vials three times since starting on June 21st. My ME-CFS Doctor ran my nagalse test, it was high enough to indicate the taking of GcMAF. My level 1.95. I just had a blood test sent to Belgium on October 2nd and am awaiting the 2nd result. Yes it is very expensive. Hard to tell what's happening to me. There are positive changes to report but I am not up to sitting a computer any further. Hope this helps. We are all fighting the good fight. Ground Hog Day and the beat goes on!

    You Poor old Sod, you see it's only ME!
  10. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Hi Xandoff,

    Curious, did you mean you sent blood to Belgium for nagalase? If so, wondering why not send to Health Diagnostics in New Jersey?

    Thanks,

    Sushi
    Xandoff likes this.
  11. Carla-nl

    Carla-nl Veteran by now

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    Belgium (i think) collects their samples and has the Nagalase test done via the Dutch branch of Health Diagnostics.... Possibly even sent through from there to New Jersey.... Going straight to Health Diagnostics in New Jersey should be easier and cheaper.
  12. Xandoff

    Xandoff Michael

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    Northern Vermont
    My Doctor collects and sends it to belgium. It is $65.00 I believe. Maybe it's just how they do in in Masssachussetts? My insurance doesn't cover it.

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