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GcMAF trial

Discussion in 'GcMAF' started by Jenny, Jun 1, 2010.

  1. Jenny

    Jenny Senior Member

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    It looks as if further trials of GcMAF are planned for patients in Belgium, the Netherlands and the UK. I've been emailing them and the info I've got is rather confusing, but it may be worth contacting them if anyone is interested.

    http://www.gcmaf.co.uk/info/

    Jenny
     
  2. Frank

    Frank Senior Member

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    I've contacted them and said that i will probably know in july if i am XMRV positive, so they could test GcMAF on me. If this happens you'll surely hear from me.

    The Dichloroacetate on the site i find very interesting as well.
     
  3. acer2000

    acer2000 Senior Member

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    Glad to hear.. I really hope the WPI does a trial with GcMAF on people that were in the original XMRV study as well. It sounds really promising! Please let us know if you try it.
     
  4. Stone

    Stone Senior Member

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    What is GcMAF?
     
  5. Hope123

    Hope123 Senior Member

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    I've seen it used primarily in the context of stimulating white blood cells in cancer patients who have undergone chemo and have a low count and thus are vulnerable to infections. It was viewed as a supportive treatment. But I have not heard it used as a potential treatment for cancer or other illnesses. However, this is not my area of knowledge. I would caution those who try this out to find out all the risks involved and to pay attention to who is funding or pushing the trial. When I saw it used previously, I remember it as a very expensive treatment.
     
  6. Hope123

    Hope123 Senior Member

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  7. Jenny

    Jenny Senior Member

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    Stone - I'm afraid all I know about this is that it stimulates or moderates the immune system and that Kenny de Merlier (sp?) is trying it.

    I'm sure others know more.

    Jenny
     
  8. Frank

    Frank Senior Member

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    Got a mail back from them
     
  9. gu3vara

    gu3vara Senior Member

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    Interesting, thx Frank.

    I would certainly be willing to try it (despite having hashimoto, wonder how big is the risk with this relatively harmless autoimmune condition)
     
  10. HopingSince88

    HopingSince88 Senior Member

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    Totally OT

    Talk about cognitive impairment. Every time I see "CgMAF" - what my brain tells me I see is

    "McGruff" - LOL sort of...

    for those of you not in the US...McGruff is a dog (sort of a mascot) in a cartoon that is a public service advertisement. His tag line is "take a bite out of crime."

    absolutely nothing to do with the thread topic. Just thought some of you would get a laugh out of it.
     
  11. Rita

    Rita Senior Member

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    Very, very interesting the mail from the GcMAF,infoteam.
    I hope this treatment works in a lot of patients and can be available for more and more patients.
    Its important also that Dr.Mikovists know about this.
     
  12. mojoey

    mojoey Senior Member

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    It's worth pointing out that the GcMaf Frank is talking about is not the same product as Yamamoto's. Yamamoto is the researcher behind the original studies and is currently trying to patent his own synthetic version of it and has been working on clinical trials for some time. If Judy were truly interested in trying GcMaf on patients, she would contact Yamamoto directly. As of right now, I only know of 2 doctors in the world that are doling out his version of GcMaf, and they are selling at very prohibitive prices. That's why cottage industries such as the one Frank contacted have sprung up to produce their own cheaper versions of the product.

    Whether any of them will render the same effect as those shown in Yamamoto's studies on HIV and cancer, only time will time. The standard protocol for HIV and cancer is 16-22 injections. Any use on CFS patients would be completely experimental at this point, as in my communications with Yamamoto I can tell even he has no idea how many injections it would take to reverse CFS completely despite his claims of working with CFS patients. He told me he'll be publishing the results of another study this coming fall.
     
  13. paolo82

    paolo82

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    I'm a guy with HIV. I bought gc maf by Noakes. It 's true. That's not Yamamoto. The protocol provides for hiv 18 injections.
    I am the third dose.
    I can know the names of two doctors who sell product Yamamoto?
    I know there is a center in Israel.
    In Italy,Yamamoto working with Professor Ruggiero University of Florence. In Vienna, AIDS 1010 will present results of a trial.
    hola
     
  14. redo

    redo Senior Member

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    What is GcMAF?
    From what I have read it seems to be labeled as a Macrophage activating factor (that's where the -MAF in the name comes from). Simply put, how I understand it is that it's use if for activating the immune system, so the immune system could handle problems, such as HIV.

    Here's a video from youtube showing the basics of GcMAF.
    [video=youtube;y7BLpR214t0]http://www.youtube.com/watch?v=y7BLpR214t0[/video]
     
  15. redo

    redo Senior Member

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    Jenny, can I ask where you got that info?
    I'd like to hear more about this. E.g. when it started. I've read somewhere that it was some ten patients getting it, but I can't recall where.

    Thanks for the info m0joey.

    Prohibitive prices... It's a shame if people are making money off this and not doing it on a pro bono basis. Especially when it's in such a early stage and they don't even know what the results will be (pos or neg). I hope the high cost is because it's expensive to acquire, and not because they're greedy.

    I certainly hope the GcMAF linked to in the first post (http://www.gcmaf.co.uk/info/) doesn't fall into that category.

    They've got this on the about us page. Does anyone know for certain if they are doing it pro bono, or for-profit?
    I haven't seen their site until today, so all I know about them is from what I can read on the site...

     
  16. Jenny

    Jenny Senior Member

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    Redo - all I know is from the site you gave a link to.

    Jenny
     
  17. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Here is a YouTube video of Dr. De Meileir speaking about his experience with GcMAF and XMRV: http://www.youtube.com/watch?v=JDYqVDrnlZw

    He reported on one confirmed XMRV patient with CFS who has shown a lot of improvement in the weeks he has been treating her with GcMAF. He also said that he is treating 10 patients but only has data, so far, on this one.

    Hope this helps.

    Sushi
     
  18. Frank

    Frank Senior Member

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    The GcMaf De Meirleir is using, is not a synthetic version!
     
  19. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Thanks so much for the report. This is very interesting. I know De Meileir is doing a patient trial, so the costs for patients in the trial may not be the full costs for the GcMAF, but do you know the price per shot or infusion that Dr. De Meileir would charge for someone not in the trial?

    Also, did you get any reports (other than what he presented in the YouTube clip) of results--both positive and negative? A big question for me and others is whether the inflammation response (IRIS) has been a big problem for patients and whether the protocol De Meileir is using includes measures to prevent or offset this.

    I suspect you are pretty tired (that is an easy guess!) but I'd really appreciate hearing anything more you have learned--whenever and however you are able to share it.

    Thanks,
    Sushi
     
  20. lizzy

    lizzy

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    Hi Paolo82,
    Have you had some progress?
    My brother have got hiv and I want help him.
    Please,let me know if your cd4 count is rising.
    Thank you,
    Best wish
    Lizzy
     

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