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GcMAF for XMRV--Gc protein-derived macrophage activating factor--anyone taking it?

Discussion in 'GcMAF' started by Sushi, Jun 30, 2010.

  1. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    I don't remember them doing that--maybe it is new? Probably they are trying to correlate test results with different conditions.

    Sushi
     
  2. john66

    john66 Senior Member

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    Hi Daff, I took the yogurt MAF earlier this year, it has been about six months and I still do not feel at the level I was when I started. I had my kidneys checked a few weeks later and they were fine. I still seem to get foamy urine too often since then, which means protein leakage. Overall, I dont think this or antivirals do my kidneys any favors. I take Benicar, which is the drug that the Marshall Protocol uses. Please be careful with that as more than a few people have had kidney issues with the huge doses of benicar that are required. There are three phases of antibiotic that are required. Any negative comments get you banned on his site, and I have found people are very defensive of questions or criticism.
     
  3. ukxmrv

    ukxmrv Senior Member

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    Hi John was it the MAF314 or the MAF878 that you took?

    Sorry to hear that your health has been worse as a result.

    The Marshall protocol was banned from one CFS group very early one due to problems with comments. That was before AB's were part of the protocol. Seems like the program has evolved since then and become more like others around.
     
  4. Daffodil

    Daffodil Senior Member

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    john...you mean the MAF made you worse??
     
  5. Tito

    Tito Senior Member

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    I'm not that surprised. My personal experience of GcMAF was a short improvement (7 weeks) followed by a very prolonged deterioration (22 months so far). I experienced suicidal thoughts and that day I just stopped the injections. The thoughts stopped but then I developed severe POTS. I also had a bout of psoriasitic arthritis, which made me believe that immune simulation was turning into auto-immunity. Knowing what I know today, I would advise to stop GcMAF as soon as the positive effect fades away. When these doctors prescribe that drug they know absolutely nothing about interaction with other drugs. For them it's just trial and error, for us, it's beyond dramatic. I have noticed that when a drug starts to show its side-effects, instead of just stopping, doctors prescribe something else on top, and then when that too gives side-effects, then a third drug is prescribed, etc.
     
    redrachel76, ikke2001be and Nielk like this.
  6. mellster

    mellster Marco

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    There is a big difference between the yoghurt forms and the injected GcMAF in terms of absorption. I haven't heard from anybody experiencing serious side effects from MAF314, but I cannot say anything about the GcMAF.
     
  7. john66

    john66 Senior Member

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    Ukxmrv-it was the 878, Daff, there is no way of knowing that it made me worse-I had a strong reaction to it and seem to be on a downhill slide since then. Is it CFS is progression or the MAF?? I dont know, or think there is a way to know.
     
  8. Daffodil

    Daffodil Senior Member

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    maybe getting worse for a while is good? dr. enlander said that some people feel awful for weeks even months and then come out of it with a lot of improvement...

    i think its very important to keep getting bloodwork and checking nk cell function too.

    i was doing well on gcmaf + tenofovir. maybe some people would do well on both drugs? maybe gcmaf targets one infection while tenofovir targets some retrovirus? who knows.

    tito..may i ask what dose you were on?

    thanks
     
    GcMAF Australia likes this.
  9. Tito

    Tito Senior Member

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    I think it was 100 ng (the whole mini flask sold by KDM)
    The whole story about 'you need to get worse to get better' has never worked for me. I was told to keep chelating despite being so unwell. I took an extra tablet and the following day my arm was paralysed. 7 years later my arm is still numb (but painful!) and I feel it is not part of me. I can move it for big gestures but cannot write any longer.
     
  10. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    They now have learned that 100 ng is too large a dose for most of us to handle. Sorry it hit you like this. I started with a much lower dose and have avoided these problems.

    When you mention "I took an extra tablet," a tablet of what?

    Thanks,
    Sushi
     
  11. Tito

    Tito Senior Member

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    I think it was called 'Heavy Metal Protector' HMP or something like that.
     
  12. Daffodil

    Daffodil Senior Member

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    i'm sorry to hear that, tito.

    i took a low dose of gcmaf and still crashed so i dont know....
     
  13. lerae

    lerae

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    Tito~
    I am sorry you had such a decline.how frustrating isnt it? I too am saddened that the doctor who told me that,"within
    3 months of taking GCMAF, you will be cured", had no idea what he was talking about. He since, has taken that protocol off for lyme patients. we were all reacting violently to it. even in small dosages. When I kept asking his assistants that it was contraindicated w/ high blood levels of tgf-b1, they said..."oh, ok, yeah, you should not take it until you get that down". so, 900 and something dollars later... for a pretty bold statement. he wouldnt get back to me about my reactions and frankly did not know how to handle it. I thought I was dying. We are left with the fall out of poor treatment. espeially when seeing doctors outside the insurance realm, where they know there would be no recourse.
    I have tried it repeatedly in really small doses still react. w/o feeling good afterwards...which it would be worth it.

    So,I am very happy for people who seem to be doing well on it. I have an extra vial that is still in the packing it came in,
    in the freezer if anyone is interested. Even for a cancer patient, which it was originally made for.
    thanks and prayers to everyone~
    Barb
     
  14. Daffodil

    Daffodil Senior Member

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    well i stopped gcmaf about 4 weeks ago i restarted tenofovir about 2 weeks ago. i am getting worse and worse now, with labored breathing, chest pain, severe malaise and an awful feeling in my brain, around the brain stem.

    i am supposed to stay on tenofovir 2 more weeks, then get nk cell function test before i restart gcmaf. however, i am feeling so sick, i dont know if i can wait. i really want some relief so would like to see if gcmaf might help me again.

    xox
     
  15. Daffodil

    Daffodil Senior Member

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    hi all. i just got my c4a results back from a month ago, after my crash. it is 17 728 with normal range of 0 - 2830
     
  16. Clodomir

    Clodomir In hibernation mood

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    Hi all,

    Before taking GcMaf, my CD57 were at 11. Now, they are at 40. I have the impression to feel better, but my VO2Max was at 8! ( normal range: 25-35). My macrophages are working now. I have no infection ( no borrelia, toxoplasmosis, etc...). I am only tired, and severegastritis ( no h pylori)
    Is it a good sign?, or no?
    If my CD57 get back to normal range, would i be back to normal or not?
    Hove someone some experience?

    Thanks

    Have a good day

    Clodomir
     
  17. CindyWillis

    CindyWillis Senior Member

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    I haven't been on the website for 3 months but wanted to let everyone know that at 100 (1ml) of GCMAF for two months now I am symptom free except for intensive exercise. I have averaged 80-95 hours a week at work for those two months and even with all nighters etc. have not have symptoms except for the intensive exercise. I find that I can exercise and am doing so but can't do it intensively without a problem. Otherwise, I am 100% good. I am also taking heppapressin from Dr. Enlander and find that it is extremely important. I ran out of it and couldn't get it for 2 weeks 7 weeks ago and started to have trouble without it. I take it daily at .20 a day (5 days) and then take .6 when I take my GCMAF shot. The heppapressin has been as important as the GCMAF. I am hoping to take the 100 (1 ml) for another 8 months and by then I should be able to start going off of it slowly. I will log back in once I can exercise intensely and let everyone know. My husband is also taking 100 (1ml) a week for the past month and is also doing very well. We are also taking B12 shots, Dr. Endlander's morning and night immune strengther and probiotics.
     
  18. Forebearance

    Forebearance Senior Member

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    I am so happy for you, Cindy!

    I am sad for you, John and Tito and Barb. Being a human guinea pig sure has its risks.

    I may be reaching the point where I will have to stop taking MAF or at least take a break for a while. My reactivity to mold toxins is getting so ridiculous that I can't find a safe place to sleep. Everywhere seems to either make my kidneys hurt or my skin burn (depending on the type of toxin that is there).

    As much as I want MAF to work for me, I have to go by my symptoms and respect them. Rats. And I was only taking a tiny bit of the yogurt.
     
  19. Daffodil

    Daffodil Senior Member

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    i have been feeling a little better the last 4 days. no way to tell if its from tenofovir or treating my recently discovered iron deficiency (9). i get the feeling its the iron.

    will restart gcmaf in a week or 2.
     
  20. Overstressed

    Overstressed Senior Member

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    Hi Daff,

    if your iron was low, it might mean an activation of latent virus. It's typical that you run low on iron after an infection. It's strange, compared to me, while I relapsed, my iron didn't get low. I will have a new bloodwork, this- or next week, and I'll check whether my iron is low too.

    Best wishes,
    OS.
     

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