Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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GcMAF: Coordinating GcMAF questions for our KDM appts

Discussion in 'GcMAF' started by Rrrr, Jul 1, 2011.

  1. Rrrr

    Rrrr Senior Member

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    see below posts.
     
  2. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Albuquerque
    Hi Rrrr,

    I think, also, that it is good not to "re-invent the wheel"--rather to learn from each other and not repeat the same questions when the answers have already been given. Many of us have common questions and also quite a few of us have upcoming appointments.

    Maybe we could (offline for privacy) make a calendar of whose appointment is when, and then learn from each other so that we don't have to use valuable appointment time to discuss what has already been recently discussed with other patients.

    Of course, many things will be individual and not fall into the category of "common questions."

    Then we can post here, answers to common questions that might be of interest to others who are taking GcMAF.

    What say? I am in touch with many who have upcoming appointments--is there anyone else with whom I am not in touch who would like to participate this way? If so, please PM me.

    Thanks,

    Sushi
     
  3. Rrrr

    Rrrr Senior Member

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    thanks, sushi, for spearheading this effort.
     

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