Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Gabby's written comments to the IoM - first meeting

Discussion in 'Institute of Medicine (IOM) Government Contract' started by Nielk, Jan 22, 2014.

  1. Nielk

    Nielk

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    This is my draft of the letter I am planning on sending in.

     
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  2. justinreilly

    justinreilly Senior Member

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    Gabby, excellent letter! Thank you.
     
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  3. Keela Too

    Keela Too Sally Burch

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    One paragraph was confusing; "You might think why is this information relevant to me? The study is proceeding as contracted by HHS and I have been chosen as a panel member to contribute to this study to the best of my abilities."

    Can I suggest changing this to -you- and -your- I spent some time wondering how I had failed to pick up on the fact that you were on the panel. ;)
     
  4. Keela Too

    Keela Too Sally Burch

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    Perhaps it was just me and my woolly brain just now. I do see what you are saying.... it just interrupted the flow of what you were saying. The message is good... :D
     
  5. Nielk

    Nielk

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    o_O

    I felt like it was strange when I was writing it. I was kind of continuing with the idea of you might be thinking that.....
    I guess it sounds confusing though.
    Thank you, @Keela Too
     
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  6. Bob

    Bob

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    Great letter Gabby.

    If it was my submission, I would add a clarification: that 'ME' should be separated from 'chronic fatigue' and 'CFS'.

    (That would be my own approach, but you might not agree.)
     
    Last edited: Jan 22, 2014
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  7. justinreilly

    justinreilly Senior Member

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    My take on Bob's subject- "CFS" should be retired, not allowed to exist independent of ME.

    Just a suggestion on the point Keela made, maybe inserting a colon after think and capitalize the W in Why would help with clarity. It would then read:

    "You might think: Why is this information relevant to me? The study is proceeding as contracted by HHS and I have been chosen as a panel member to contribute to this study to the best of myabilities."
     
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