The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
Discuss the article on the Forums.

"Gabapentin (Neurontin) for ME" (April 13) by cfssufferer

Discussion in 'General Treatment' started by Dolphin, Apr 13, 2016.

  1. Dolphin

    Dolphin Senior Member

    Messages:
    10,528
    Likes:
    27,356
  2. Martial

    Martial Senior Member

    Messages:
    1,342
    Likes:
    1,177
    Ventura, CA
    I was prescribed gabapentin off label for anxiety and panic attacks many, many years ago. That stuff can have some pretty negligible side effects but I did hear it prevents some kind of brain processing while on the drug.
     
    Justin30 likes this.
  3. "Negligible" ? think you mean the opposite, surely? :)
    varies by person quite a lot as to the severity and pro/con.
    I have to take it at quite a low dose or it really messes me up, but the low does helps :)
     
    Bob likes this.
  4. charles shepherd

    charles shepherd Senior Member

    Messages:
    2,121
    Likes:
    14,444
  5. hellytheelephant

    hellytheelephant Senior Member

    Messages:
    834
    Likes:
    4,085
    S W England
    I was prescribed Gabapentin for chronic pain...and it had some really unpleasant side effects etc hallucination, paranoia etc. I know some people who have had vile side effects and others who cannot imagine life without it.
     
    Bob likes this.
  6. Strawberry

    Strawberry Senior Member

    Messages:
    770
    Likes:
    1,428
    Seattle, WA USA
    @SilverbladeTE what dose do you take? Also, how do you deal with the tolerance issue? When I tried it, I could only take a certain level for 3 days then I had to take one pill more. Then 3 days later take one pill more... Do you stagger days on, days off? I have thought about giving gabapentin a 2nd chance. I just don't want to deal with constantly titrating up.
     
  7. Martial

    Martial Senior Member

    Messages:
    1,342
    Likes:
    1,177
    Ventura, CA
    When I was on it the most I remember were seizure like episodes with my brain, and a lot of drowsiness during the day, it was very easy to wean off and it always concerned the state of my liver health while I was on it.
     
  8. helios

    helios

    Messages:
    76
    Likes:
    30
    Brisbane
    I was prescribed gabapentin off label by my CFS doc as he was experimenting with his patients with some of Goldstein's recommendations. When I first used it I loved it and thought I was going to be one of these overnight recoveries that I read about in articles written by Dr. Goldstein. I just felt close to 100% on it, but then it wore off after 5 days. I stayed on it for weeks, and upped the dose hoping for a comeback, but unfortunately it was now like taking a sugar pill. I had a break from it them tried it again, and got the great effect again, but now only for about 2 days. For a few years there I used it by going off and on - 2 weeks off 2 days on.
    I tried something similar, I think valpoic acid and also the next generation of gabapentin (forget its name) which was marketed more as pain signal blocker. No great boost to well-being but it was a good sleep aid.
     

See more popular forum discussions.

Share This Page