Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Further insights into war against data sharing: Science Media Centre’s letter writing campaign to UK

Discussion in 'General ME/CFS News' started by Kyla, Jan 31, 2016.

  1. Kyla

    Kyla ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ

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    Canada
  2. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

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  3. halcyon

    halcyon Senior Member

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    Viewed in this context, I think it's clear that White and pals have one true motivation behind all of this. They don't give a lick about academic freedom, harassment, patient confidentiality, etc. Their motivation is purely personal gain. They want exclusive rights over "their" data so they can maintain their little fiefdom and slowly drip out papers over decades in order to build their careers. If the data is freely available it ruins their ability to do so.

    No one should be given exclusive rights to data that was generated using public funds.
     
  4. jimells

    jimells Senior Member

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    We really are dealing with a criminal conspiracy organized by a small club - it's not just our overactive imaginations.
     
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  5. Esther12

    Esther12 Senior Member

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    Nothing criminal about it. Also, expect that many of those involved consider themselves to be decent people doing the sensible thing. Which is why the Freedom of Information act, and open data, are so important. The people at the top of society should not be trusted to decide amongst themselves how the rest of us should be treated.
     
  6. A.B.

    A.B. Senior Member

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  7. jimells

    jimells Senior Member

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    Haha, it didn't take long for the "Peanut Gallery" (us) to show up on Dr Coyne's new essay :angel:
     
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  8. jimells

    jimells Senior Member

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    If A hires B to conduct fraudulent research with pre-determined claims of treatment effectiveness, and those claims are used to harm people, that looks like a criminal conspiracy to me. When Big Pharma does it, they get their hands slapped. When Big Tobacco did it, they paid billions and billions (did anyone go to jail? probably not).

    It will be interesting to see if the Wessely School has got the right connections to escape prosecution. Eventually there will be a class action lawsuit - some hungry lawyer will smell the blood in the water. I can't wait to see that.

    Well of course. Even Stalin loved his daughter, after a fashion. And his hatchet men were just following orders and never questioned whether those orders were moral or not.
     
    Last edited: Jan 31, 2016
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  9. They and many others involved in similar hellishly evil, abusive crap, should be arrested.

    more people are realizing how huge the webs of corruption, nepotism, abuse, cover ups, secret societies, "you scratch my back and I'll cover up your crimes" etc, that is going on.
    The UK's Elties largely need *wiped out*.
    note: I'd rather have them broken and made to eat humble pie, banned form ever holding any position of power for rest of their life and made to live like we peons. No more "Elites", ever again, always destroys societies :(
    Some of 'em are so obscene, powerful and dangerous they are menace and have to be "deep sixed" to protect the Public.

    Blech, yes I do know concerns ala French and Russian Revolutions and Cambodia's insanity...but our Elite *ARE* monstrous criminals :/
     
    Last edited by a moderator: Jan 31, 2016
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  10. soti

    soti

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    what was that thing I saw somewhere about "evil = desire + denial"? seems about right.
     

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