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From the 1st annual XMRV conference

Discussion in 'XMRV Research and Replication Studies' started by George, Sep 7, 2010.

  1. taniaaust1

    taniaaust1 Senior Member

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    I personally do think it is a good idea to let government people etc know that we dont want the CFS/ME stuff in Fauci's hands... now's our chance to be outting those old ones who did us wrong.. and calling for new people to be dealing with us. We should be doing it now (as after all the XMRV may turn out not to be caustive and we may need some open minded ones high up on our side then). The CFS/ME community shouldnt be having to deal with closed minded ones who have ignored our desperate cries for past 10-25 years.

    Guess with Lipkin.. we just will have to sit back and hope he's serious about wanting to find it and help us.
  2. George

    George waitin' fer rabbits

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    From Dr. Huber

    I think Frank Ruscetti must have talked about something unpublished cause there was a really long pause, like 30 minutes, between him and the next time CC started tweeting again. (shrug) course maybe they just had to go to the potty.
  3. George

    George waitin' fer rabbits

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    from the audience

  4. Sunshine

    Sunshine Senior Member

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    As may the fact yet again old blood is used. (5 years old), only 3 patients had new blood taken in a test that doesn't work.

    No one has ever replicated the WPI's methods and NOT detected XMRV. It's that's simple to understand.
    FOLLOW THE WPI METHODS Brigitte, and then show us you can't detect XMRV.
  5. Otis

    Otis Señor Mumbler

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    Collection and storage may be the key. Lo/Alter used old blood for their CFS patients. Of course her methods may be questionable too. Very hard to pit this all together via tweets, although I very much appreciate the effort.
  6. Sunshine

    Sunshine Senior Member

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    Brigitte Huber is on a DVD (InvestinME Conference video 2010).

    She simply refused to listen to Dr Judy Mikovits explaining on a 'round table session', why contamination has been ruled out using WPI technology.
    After Judy M had been talking for about 10 mins non stop at 100mph, Brigitte just continued in a brief riposte. 'It's contamination'. Somewhat infuriating for the viewer I can tell you.

    Lets see in the next few hours at this conference what the ME Research UK/Blomberg people found, De Meirleir, Cheney, & Mikovits.

    Even after hearing this if they are all positive, Brigitte will say the same thing. Maybe the US military can use Brigitte as a humane WMD? She could infuriate the enemy to death, with no collateral damage.
  7. Martlet

    Martlet Senior Member

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    Thanks for the smile. I was getting more and more depressed reading the posts above.
  8. FancyMyBlood

    FancyMyBlood Senior Member

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    CC twitter skipped from Huber's to Lo's presentation. Anybody knows more about the Hanson study?
  9. Kate_UK

    Kate_UK Senior Member

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    Now Judy is on - ClevelandClinic: Judy Mikovits of Whittemore Peterson Institute calling this HMRV (Human MLV-Related Viruses) to describe this class of viruses
  10. George

    George waitin' fer rabbits

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    I think there must be a lot of stuff that they can't talk about because of some really big gaps.

    from CC
  11. Bob

    Bob

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    So we have a new name we can now use for all the MLV-related viruses?

    HMRV

    This makes our lives on the forum a bit easier!
  12. VillageLife

    VillageLife Senior Member

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    dr mikovits is on! :)
  13. Cort

    Cort Phoenix Rising Founder

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    Yes, Fauci is scary but he is just a figurehead - he really means nothing. What he is there for is to demonstrate to the rest of the world (not us) that the NIH is serious about XMRV. He is, after the Director of the NIAID - one of the top medical officials in the world....its amazing that they would feel the need to have him oversee it.

    Lipkin is the key and you could not have asked for better - he is an recognized ace at discovering new pathogens and developing new techniques to discover pathogens. He is at the cutting edge of pathogen discovery. He broke West Nile, was a major figure in SARS and now they're asking him to do the same with XMRV.

    FORGET Fauci, he is not leading the study - Focus on the man leading the study. Lipkin is a major figure and his appointment indicates the NIH is now serious about XMRV. You couldn't ask for better.
  14. pictureofhealth

    pictureofhealth XMRV - L'Agent du Jour

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    We already knew that Huber's samples were 'negative' - no surprises there. What is new (I think) is the audience's assessment that using the 'heparinised blocks' during the sample storage/processing may have led to the negative findings.

    I wonder whether this might translate to a real problem in ME/CFS patients who happen to be taking heparin (blood thinner) and would test negative for XMRV in a study and later on a clinical setting? - although that is a bit simplified I'll admit. Warfarin is more likely to be used as a longterm anti coagulant in a patient who needs it (eg heart condition) - heparin is more short term - unless practices have changed?

    Still its good to bear in mind for the future that there are potentially some medications that patients are taking out there in the real world, which may lead to a false negative XMRV test result in an otherwise XMRV positive patient.
  15. VillageLife

    VillageLife Senior Member

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    From FACEBOOK:
    The CFIDS Association of America
    Dr. Francis Collins, NIH Director, is on the front row for the CFS session at the 1st International XMRV Workshop currently taking place at NIH.

    :victory::victory::victory::victory::victory::victory::victory::victory:

    HES ON THE FRONT ROW!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
  16. taniaaust1

    taniaaust1 Senior Member

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    Judy Mikovits is now talking
  17. Sunshine

    Sunshine Senior Member

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    More than likely, unless someone's accidently 'tweeting' us private conversations from a dental clinic.
  18. Bob

    Bob

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    Yes, we aren't hearing a lot about many of the presentations... We haven't heard much about Ruscetti's presentation, but Andrea Whittemore implied it was going to be a significant presentation...

    I'm holding my breath now for Mikovit's UK study results, but I don't know if we're be allowed to know them today.
  19. pictureofhealth

    pictureofhealth XMRV - L'Agent du Jour

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    So the main change is the 'H' - I like it.
  20. George

    George waitin' fer rabbits

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    Yeah, this is about as much fun as a dental appointment and about as exciting as watching paint dry. (grins)
    I hope tomorrow, Thursdays are the days a lot of journals publish, we get some f*%&*$#@ actual studies we can tear apart. I want ta see some science! Growl. (grins) I'll be a good dog now.

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