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From the 1st annual XMRV conference

J

jayhawk

Messages
15
Its actually plausible for an antibody test to be positive without exposure. We dont know enough about this group of viruses yet to proclaim anything with 100% certainty. There is a reason why they have these conferences with differing opinions and why science is science. Its also worth re-mentioning that having antibodies is not eqaul to having an active infection either but rather evidence of exposure.

Please let the professionals figure this out without belittling a researcher who seems to be in it to further our knowledge of the illness. From what I know about this particular researcher is that they dont come from the psychobaber club. Nobody is saying you have to agree with her but please respect her voice and appreciate its contribution to the process. Its actually good to have someone constantaly questioning the methods. In the end science is stronger.
 
alex3619

alex3619

Senior Member
Messages
13,810
Location
Logan, Queensland, Australia
Hi, I have been trying to refresh the Cleveland Clinic twitter webpage and my browser can't find it any more. I have tried twenty times in twenty minutes - no joy. Have we broken it? Is the internet going to melt down today? Is this going to happen during the live Q & A? I noticed earlier that the NIH live feed page had 46 viewers earlier with its other live broadcasts. What is the bet the XMRV workshop gets hundreds, thousands or breaks?

Bye
Alex

PS Two hours and eighteen minutes to go...
 
S

Sasha

Fine, thank you
Messages
17,863
Location
UK
George said:
There's an hour in between the first Dr. Mikovits Tweet and the second set. That's a lot of time folks!
Click to expand...

Yeah, what did she say?! What did she say?!

But XMRV is in the UK, it's official... roll on a proper press release...
 
S

Sasha

Fine, thank you
Messages
17,863
Location
UK
alex3619 said:
Hi, I have been trying to refresh the Cleveland Clinic twitter webpage and my browser can't find it any more. I have tried twenty times in twenty minutes - no joy. Have we broken it?
Click to expand...

I'm still getting that page but when I refresh it, the latest tweet is still listed as having been posted as long ago as it was before I refreshed (e.g. it's still "posted 20 secs ago" ten minutes later). Then maybe an hour later I'll hit it and get a whole bunch of updates at once. Weird.
 
ixchelkali

ixchelkali

Senior Member
Messages
1,107
Location
Long Beach, CA
xrayspex said:
Fauci's name makes me nervous, didn't he support Straus back in the day? I think he probly knew full well there was a viral component. It all sounds hopeful though, you think Fauci et al figure they have to go with the flow now and act intrigued by discovery of a "new" virus?
Click to expand...

Let's just say that if the history of CFS were divided between good guys and bad guys, Fauci wouldn't be on the good guy list. It makes me nervous, too, but maybe it's a good thing to know who you need to watch closely. I'm open to results; trust will take a little longer.
 
L

Lynn

Senior Member
Messages
366
Mikovits says her research on UK patients was just unblinded & she’s working on a manuscript for publication w/more details #XMRV #MECFS
 
George

George

waitin' fer rabbits
Messages
853
Location
South Texas
Anyone notice that the run time on the end of the session Q and A is going to be 2 hours long??? Maybe they are asking folks not to tweet info till the Q and A session.
 
S

Sasha

Fine, thank you
Messages
17,863
Location
UK
Can't stand the waiting, I'm going to have to go and watch Midsomer Murders for half an hour (it might stand in for chocolate, pictureofhealth!). :Retro smile:
 
SOC

SOC

Senior Member
Messages
7,849
Is some generous person planning to summarize the Q&A? I'm afraid if I curl up in the sun for a little catnap, I'll miss everything.

Not that I could follow and hour or two of audio-only info anyway......
 
P

pictureofhealth

XMRV - L'Agent du Jour
Messages
534
Location
Europe
Sasha said:
Can't stand the waiting, I'm going to have to go and watch Midsomer Murders for half an hour (it might stand in for chocolate, pictureofhealth!). :Retro smile:
Click to expand...

Don't worry Sasha - I snuck out shortly after that post to get some chocolate - heh heh! Munch munch ... Too bad I can't pass it around the forum. "Midsomer Murders" on tonight, with John Nettles? Well that's it - I'm off.
 
Otis

Otis

Señor Mumbler
Messages
1,117
Location
USA
George said:
Anyone notice that the run time on the end of the session Q and A is going to be 2 hours long??? Maybe they are asking folks not to tweet info till the Q and A session.
Click to expand...

I'm hoping we get 2 hours but I expect that's just the duration for which the Video Conferencing was scheduled. For example, to prevent the last 5 minutes from being dropped because they didn't schedule enough time.
 
R

Rita

Senior Member
Messages
235
ixchelkali said:
Yes!!!:victory:
Click to expand...

I think this are the more important words today for the moment.
It means that now the research and the work will be towards the patients, not against them.These are words of recognition, at last.

I hope some of you will be so kind to translate in this wonderful forum some of the more important Q & A, for the patients that cant understand the spoken-American English of the researchers who spoke so quickly that is difficult to
understand, like Dr.Mikovits, that is a speaking bullet.
 
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