1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
ME/CFS and the Magic of the Canine Factor
There's been plenty of research indicating that having pets is good for your health. I never really noticed any particular benefits to having cats, though that may have had more to do with my cats. They've been fairly indifferent to my presence and we've shared a live-and-let-live...
Discuss the article on the Forums.

Frequent pins and needles.

Discussion in 'Peripheral Neuropathy' started by justy, Nov 18, 2012.

  1. Lou

    Lou Senior Member

    Messages:
    444
    Likes:
    272
    southeast US
    Hi Justy,

    Have you been taking B1 while doing methylation? The extra B12 could easily have lowered some or many of the other B's. Quick, little pricks at the skin and pins and needles are dead give-aways of B1 deficiency. Can't hurt to try some.
    justy likes this.
  2. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,447
    Likes:
    4,188
    Sth Australia
    sorry to hear that. Yeah it is a very unpleasant symptom.

    Like you, I stuggled to sleep on my back due to it and when I did finally manage to learn to start sleeping on my back, I then would get intense lucid dreaming going on which sleeping laying on my back causes me (which then further just added to all my issues.. as thou I was asleep.. my brain wasnt getting no rest due to being still conscious when dreaming).

    I really suggest to try to work on all the possible things which could cause this.. circulation and anything else people can think of eg if caused by low blood volume maybe a drug to help that could help or maybe even thinning the blood may help seeing nearly all of of us with ME/CFS have hypercoagulation issues there too and I guess this symptom could be a hypercoagulation issue too (specialist blood lab once found that eg hughes syndrome common in us with a study.. so I'd logically think that something like taking some baby asprin right before bed may help it if its being caused by something like that.

    I hope you dont get worst.. I acutally got to the point where I thought I may end up loosing some fingers due to it (as my circulation was so severely badly being affected while I was asleep. I consider myself lucky I didnt end up with permanent damage done)

    I didnt know enough at the time to trial things to help the symptom and would try handling that symptom differently if I had known what I knew now.

    I suggest you try to get some blood work done to try to find out if hypercoagulation may be involved in causing this symptom for you.. eg
    - "MTHFR polymorphism" test or a "thrombophilia genotypes test" (which checks for MTHFR and other issues which can cause thicker, sticky blood issues)
    - APTT (can show up an abnormally shortened thromboplasmin time) the APTT is done on as part of a labs "coagulation study" test along with it tests prothrombin time..

    All those above things which affect blood and can cause clots etc due to what they do to blood, I found out in me many years later were out of the normal ranges or I had and in my case must of also played a part in the issues I had with the symptom you are having. And these types of issues are more common in ME/CFS.

    edit.. added info on the tests i suggest due to this symptom

See more popular forum discussions.

Share This Page