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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Free Webinar With Dr. Peter Rowe, Director of Chronic Fatigue Clinic

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started listening; sounded good, re PEM (showed change in gene expression slide from L.Batemans talk);
but then he said CFS was common and this slide came up. I haven't listened to the rest.
Not sure what to think.:confused:
ETA: Ok he has clarified a bit and even mentioned the PACE trial briefly. There are 'flavours' of Ray Perrins theories; actually quite a mixture of different theories which does show a more 'open' approach to another CFS paediactrician we know of.;)
 
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Jesse2233

Senior Member
Messages
1,942
Location
Southern California
wow fascinating stuff

When I first got sick I emailed every ME/CFS researcher I could find, and Dr Rowe was the only one who responded.

Wonder if the IVIG and OI numbers are just post mono

And what the effects of combined IVIG and OI treatment would be in terms of QoL