Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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Free Webinar With Dr. Peter Rowe, Director of Chronic Fatigue Clinic

Discussion in 'Upcoming ME/CFS Events' started by Rowena Ilagan, Mar 9, 2017.

  1. Rowena Ilagan

    Rowena Ilagan

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    Joh, dangermouse, MEMum and 5 others like this.
  2. AndyPR

    AndyPR Senior Member

    Bump as this is tomorrow.
     
    MEMum likes this.
  3. AndyPR

    AndyPR Senior Member

    Recording now available on YouTube.
     
    ahimsa, Joh, Timaca and 3 others like this.
  4. Rowena Ilagan

    Rowena Ilagan

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    Thank you for sharing AndyPR! I was just about to post the link to the You Tube video.
     
  5. lnester7

    lnester7 Seven

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    USA
  6. slysaint

    slysaint Senior Member

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    upload_2017-3-23_10-40-56.png

    started listening; sounded good, re PEM (showed change in gene expression slide from L.Batemans talk);
    but then he said CFS was common and this slide came up. I haven't listened to the rest.
    Not sure what to think.:confused:
    ETA: Ok he has clarified a bit and even mentioned the PACE trial briefly. There are 'flavours' of Ray Perrins theories; actually quite a mixture of different theories which does show a more 'open' approach to another CFS paediactrician we know of.;)
     
    Last edited: Mar 23, 2017
    atleje, Valentijn, Joh and 1 other person like this.
  7. Murph

    Murph :)

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    Some slides from the presentation that I found interesting / hadn't seen before.

    Screen Shot 2017-03-23 at 10.20.47 PM.png Screen Shot 2017-03-23 at 10.19.47 PM.png Screen Shot 2017-03-23 at 10.19.25 PM.png
     
  8. Jesse2233

    Jesse2233 Senior Member

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    Southern California
    wow fascinating stuff

    When I first got sick I emailed every ME/CFS researcher I could find, and Dr Rowe was the only one who responded.

    Wonder if the IVIG and OI numbers are just post mono

    And what the effects of combined IVIG and OI treatment would be in terms of QoL
     

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