A New Decade of ME Research: The 11th Invest in ME International ME Conference 2016
Mark Berry presents the first in a series of articles on the 11th Invest in ME International ME Conference in London ...
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Free Online Showing Of Forgotten Plague This Weekend Only

Discussion in 'General ME/CFS News' started by Never Give Up, Jan 16, 2016.

  1. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    Try this link:

    or

    link to the film on vimeo. (use this link if you are unable to enlarge the video using the link above).

    Password -- forourfans

    Forgotten Plague
    6 hrs ยท
    We're pleased to announce that the Free Preview for Forgotten Plague is now available online! Please share with everyone who you think might be interested, from doctors to legislators and everyone in between. We hope you enjoy it! And please be sure to chime in with what you think via social media and directly to us at forgottenplague@gmail.com!

    The link will be live until Monday evening at 7pm EST (12am GMT). So please take advantage of the free preview while it's available for a limited time.

    This version also has English subtitles.

    Link: http://www.forgottenplague.com/shop/?product_count=8
     
    Last edited by a moderator: Jan 16, 2016
    ahimsa, TigerLilea, nandixon and 15 others like this.
  2. Kina

    Kina

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    Just to note, this thread was getting bogged down with posts about the link to the video. These posts have been removed because the link has been fixed. If it doesn't work for you or there are still problems, please contact me.

    Thank you.
     
    ballard, Sushi, ghosalb and 5 others like this.
  3. minkeygirl

    minkeygirl But I Look So Good.

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    Left Coast
    WOW!
     
    TigerLilea and Dolphin like this.
  4. Kina

    Kina

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    I watched this earlier today. The footage of Whitney Dafoe is absolutely gut wrenching.
     
    TigerLilea, ballard, Dolphin and 3 others like this.
  5. ahmo

    ahmo Senior Member

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    stalled out after a few minutes. too many viewers? hope so.

    Suggestion: put password in bold.
     
  6. Kina

    Kina

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    I bolded it, made it bigger, and changed the color to red. Hopefully, that will suffice.
     
    ahmo and Never Give Up like this.
  7. halcyon

    halcyon Senior Member

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    Your connection may not be fast enough to stream the movie in 720p HD resolution. Unfortunately the next lowest resolution they've provided for SD is 360p which might be unwatchable. If you have enough hard disk space you can actually download the entire video by clicking the download link under the video on the Vimeo page and watch it at once instead of streaming it.

    I have trouble playing 720p content on Vimeo for some reason but have no trouble with 720p content on Youtube.
     
    Never Give Up and Sidereal like this.
  8. Sushi

    Sushi Senior Member Albuquerque

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    I'm watching it now and no problems so far.
     
  9. Sasha

    Sasha Fine, thank you

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    I see it's had nearly 4,000 views on vimeo.

    It's possible to leave comments.
     
    ukxmrv, Jennifer J and Never Give Up like this.
  10. Sasha

    Sasha Fine, thank you

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    Can somebody competent tweet this to James Coyne, or send him the FB link?

    @Bob (in case you have the brains and the energy!).
     
    Daisymay likes this.
  11. RYO

    RYO Senior Member

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    Glad to finally watch this video. I hope views, awareness, and support will grow. I tried to access www.meaction.org but website seems to be down.@Never Give Up Thank you for posting this.
     
    Never Give Up likes this.
  12. ahmo

    ahmo Senior Member

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    Thanks Kina for password. I found myself searching for and over-looking it initially. that's me.
    I switched browsers, worked fine. Fine video. harrowing. I am so very fortunate.
     
    Dufresne likes this.
  13. Forbin

    Forbin Senior Member

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    An extremely powerful and effective film. Getting a glimpse of how severe the illness can be in some patients reminds me of how shocked I was when I first discovered that ME could be far worse than even I could imagine. I didn't think it was possible to get much worse and survive. Dr. Klimas was right when she called the disease "wicked."

    [The end credits seems to suggest that Ian Lipkin appeared, but I did not see him unless that was the back of his head in a still photo from 1980's (I think when there were discussing AIDS).]
     
    Dolphin likes this.
  14. roller

    roller wiggle jiggle

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    shocking. even more than the disease the helplessness.

    Whitney Dafoe (son of the prof) should have all financial means and with this access to the best health support. and there is none?
    this is mind blowing.
     
  15. Sasha

    Sasha Fine, thank you

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    5,400 views now.

    Please leave a comment on the video - it will help it to get attention. :)
     
    Jennifer J likes this.
  16. RYO

    RYO Senior Member

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    How do we get this movie listed as documentary on Netflix? @Never Give Up
     
    Last edited: Jan 17, 2016
    ahmo, halcyon, lilpink and 2 others like this.
  17. Dolphin

    Dolphin Senior Member

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    Where do you see that?
     
  18. Sasha

    Sasha Fine, thank you

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    You have to follow the link to vimeo, enter the password, and then scroll down a bit.

    6,065 viewings now! :)
     
    Jennifer J and Dolphin like this.
  19. shannah

    shannah Senior Member

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    Ryan has certainly packed a lot of information and a lot of different facets of the illness into a little over an hour. Well organized.

    I wasn't aware that Gordon Broderick had moved his research from Canada to work with Nancy Klimas at NSU. Canada's loss for sure as the giant main frame he's using to map biological pathways and interchanges is pretty impressive.

    One observation is that all of the featured patients seemed really well cared for and well supported. I suppose that was a deliberate action on Ryans's part but it hardly seems representative of the ME community. I suppose it could have been a distraction from other parts of the film if he had included the uncared for, the struggling, the destitute, the desperate. Anyway, made me feel really warm inside to know that there are those out there with ME who are well cared for and have the luxury of focussing solely on their own health.
     
  20. lilpink

    lilpink Senior Member

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    Really good to be able to see this at last! My other half has eventually hooked our PC through to our TV as I simply can't watch any videos on a PC screen. This way I was able to lie down and properly take it in. It's so good to see people of calibre such as Ron Davis and James Watson working to try to unravel this for us. Science (hopefully) trumping non-science aka 'psychiatry'.
     
    justy, Jennifer J, Daisymay and 2 others like this.

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