The 12th Invest in ME Research Conference June, 2017, Part 2
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Free Celiac disease screening tests @ University of Chicago, Oct 17

Discussion in 'Other Health News and Research' started by Kyla, Sep 30, 2015.

  1. Kyla

    Kyla ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ

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    For anyone in the Chicago area that hasn't had CD ruled out yet, or thinks they might have co-morbid CD:

    University of Chicago Celiac Disease Center runs a once yearly free screening.
    For those not familiar, this is the antibody testing (blood tests), if you test positive you would need an endoscopic biopsy to confirm (no idea whether this is also covered by the free program).

    you also need to still be on a gluten-containing diet, or go back on a "gluten challenge" for the tests to work (you need to have an ongoing auto-immune reaction to produce the antibodies )

    sign up here:
    http://www.cureceliacdisease.org/blood-screening-sign-up-form
     
    Kati likes this.
  2. minkeygirl

    minkeygirl But I Look So Good.

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    @Kyla. I'm getting that test in a few weeks but she said nothing to me about a diet

    I usually eat Mostly gluten free so do I have to eat gluten before the test?

    Thanks.
     
  3. minkeygirl

    minkeygirl But I Look So Good.

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    Valentijn likes this.
  4. Kyla

    Kyla ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ

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    I'm not an expert, but from what I've been told I think you would still be okay since you are still eating gluten. (Ie - you never went 100% gluten- free?)
    You could purposely eat more until then if you can't reschedule.

    It is also possible you might be eating more than you think - speaking as someone who has had to thoroughly eliminate it because of CD, it hides in a lot of places

    I am baffled that you would not have been told this by whoever scheduled the test. That is disheartening that doctors still don't know the testing protocols :(
     
    Last edited: Sep 30, 2015
  5. minkeygirl

    minkeygirl But I Look So Good.

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    I eat very simply so it's doubtful I'm eating enough gluten to show in a test even if I did have some. From what I've been reading you need the equivalent of 2 slices of bread a day for at least 6 weeks. I'll do it next labs in w few months.

    I'm not surprised about her. She also told me I probably don't have SIBO because i have constipation. Totally untrue.

    I know if I had serious problems I wouldn't go to her. She's in my plan and geographically desirable.

    In just glad you posted this. I had no idea.
     
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