Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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Forward ME respond to NICE consultation on new guideline for suspected neurological conditions

Discussion in 'General ME/CFS News' started by AndyPR, Sep 11, 2017.

  1. AndyPR

    AndyPR Senior Member

    Read more at http://www.meassociation.org.uk/201...ed-neurological-conditions-11-september-2017/
     
    Skycloud, trishrhymes, MEMum and 13 others like this.
  2. charles shepherd

    charles shepherd Senior Member

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    ME/CFS and neurologists:

    The majority of UK neurologists

    (84% in one rather flawed peice of research: http://www.meassociation.org.uk/201...eurological-illness-survey-results-discussed/)

    do not believe ME or CFS is a neurological disease and see it as a functional somatic sydrome

    Abstract
    In this month's issue, we report a survey of members of the Association of British Neurologists, which asked if they viewed chronic fatigue syndrome (CFS) as a neurological condition--84% of respondents did not. This is at odds with current classification in ICD-10. We discuss the difficulties of classifying CFS and myalgic encephalopmeylitis (ME), including historical and sociological factors, the pitfalls of the physical/psychological dichotomy and why classification matters to doctors and patients.

    Chronic fatigue syndrome: Labels, meanings and consequences (PDF Download Available). Available from: https://www.researchgate.net/public...gue_syndrome_Labels_meanings_and_consequences [accessed Sep 11, 2017].

    In other words, they believe cause and magagement should be largely based on the psychosocial model whereby ill health and disability in ME/CFS is far more related to abnormal illness beliefs and behaviour than any form of underlying disease process

    Dr Charles Shepherd
    Hon Medical Adviser, MEA
     
  3. anni66

    anni66 mum to ME daughter

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    scotland
    I sincerely hope that biomedical research ( sadly largely elsewhere) continues at the same pace as the previous couple of years and refutes this " false belief" . Perhaps neurologists would benefit from a particular version of CBT.
    The most upsetting aspect is that UK was at forefront of biomedical research in the 1980s. Think where we might have been now ....
     

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