New Atmosphere, New Vision: Gibson and Whittemore Kick Off Invest in ME Conference 2016
Mark Berry reports on Dr. Gibson's introduction and Dr. Whittemore's keynote speech, at the 11th Invest in ME International ME Conference in London.
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Forward ME group (UK) minutes - 12th Feb 2014 (focusing on child protection issues)

Discussion in 'General ME/CFS News' started by Bob, Mar 6, 2014.

  1. Bob

    Bob

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    Forward ME group minutes from 12th Feb 2014:
    http://www.forward-me.org.uk/12th February 2014.htm

    These minutes are well worth a read. They include interesting and important discussions about the difficulties faced by families with children with ME in the UK (e.g. child protections issues, inappropriate treatments, problems with education, & the SMILE trial.) It seems that these issues are common, and there are many similar cases being handled by a number of the attendees at the meeting.


    Among the subjects highlighted in the minutes are:
    • Various issues for families with children with ME: Inappropriate treatment, child protection issues & problems with education.
    • SMILE Trial and the Lightning Process.
    • UK Research Collaborative.
    • Rituximab.
    • UK welfare benefits: PIP and WCA.
    • Dr Nigel Speight re patients in the Netherlands and Germany.
     
    Last edited: Mar 6, 2014
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  2. Bob

    Bob

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    I'm tempted to quote some sections of text, but it all needs quoting.
     
  3. Valentijn

    Valentijn Activity Level: 3

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    It's a short enough read, really just an outline :)
     
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  4. Valentijn

    Valentijn Activity Level: 3

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    Anyone know more about this one?
     
  5. Bob

    Bob

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    I have come across some info, but I can't remember what or where.
    If I find it again i'll post it here.
     
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  6. Bob

    Bob

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  7. Esther12

    Esther12 Senior Member

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    Thanks for saving me the time of reading it Bob!
     
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