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Forward ME group (UK) minutes - 12th Feb 2014 (focusing on child protection issues)

Discussion in 'General ME/CFS News' started by Bob, Mar 6, 2014.

  1. Bob

    Bob

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    Forward ME group minutes from 12th Feb 2014:
    http://www.forward-me.org.uk/12th February 2014.htm

    These minutes are well worth a read. They include interesting and important discussions about the difficulties faced by families with children with ME in the UK (e.g. child protections issues, inappropriate treatments, problems with education, & the SMILE trial.) It seems that these issues are common, and there are many similar cases being handled by a number of the attendees at the meeting.


    Among the subjects highlighted in the minutes are:
    • Various issues for families with children with ME: Inappropriate treatment, child protection issues & problems with education.
    • SMILE Trial and the Lightning Process.
    • UK Research Collaborative.
    • Rituximab.
    • UK welfare benefits: PIP and WCA.
    • Dr Nigel Speight re patients in the Netherlands and Germany.
     
    Last edited: Mar 6, 2014
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  2. Bob

    Bob

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    I'm tempted to quote some sections of text, but it all needs quoting.
     
  3. Valentijn

    Valentijn WE ARE KINA

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    It's a short enough read, really just an outline :)
     
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  4. Valentijn

    Valentijn WE ARE KINA

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    Anyone know more about this one?
     
  5. Bob

    Bob

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    I have come across some info, but I can't remember what or where.
    If I find it again i'll post it here.
     
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  6. Bob

    Bob

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  7. Esther12

    Esther12 Senior Member

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    Thanks for saving me the time of reading it Bob!
     
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