Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Forward ME Group Minutes, March 14 meeting

Discussion in 'General ME/CFS News' started by Tom Kindlon, Apr 25, 2017.

  1. Tom Kindlon

    Tom Kindlon Senior Member

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    Forward ME ["charity alliance"] Group Minutes, March 14 meeting

    https://goo.gl/k7gSZX
    i.e.
    http://www.meresearch.org.uk/news/forward-me-group-minues/ (sic)

    Some extracts:

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    [Tom: I imagine there's a good chance this won't happen in May because a general election has been called]

    ---

    ---

    Tom:
    I think a problem with social workers (maybe especially in the UK) is that they can get in trouble for missing child abuse cases (including potentially losing their job) but don't get into nearly as much trouble for over-diagnosing child abuse.
     
  2. BurnA

    BurnA Senior Member

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    So if it costs thousands let's raise the money!

    At some point money has to be spent, it's the value for money that needs to questioned not the cost.
     
  3. Dolphin

    Dolphin Senior Member

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    Maybe a crowdfund could be set up where the money is only taken if the target is reached.

    I'm not volunteering.
     
  4. Gday

    Gday

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    I think the issue is one of fraud and misfeasance in public office. The wages of teachers and Drs and social workers are paid from public funds. Parents are finding their child's educational records and medical records tampered with plus false and manufactured statements are made. There are also issues for the equality commissioners. Discrimination at every level.
     
    Last edited: Apr 25, 2017
    Cornishbird likes this.
  5. Gday

    Gday

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    Sorry Tom I don't know why it became mixed with your comments edited.
     
    Tom Kindlon likes this.
  6. Binkie4

    Binkie4 Senior Member

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    There was discussion last week on another thread about the letter @charles shepherd referred to .

    @AndyPR asked AfME who haven't yet signed the letter because it supposedly has to go to their Trustees, if the Trustees had met.

    AfME responded that they are meeting at the end of this week, and that the decision would be available next week.

    Would be great if AfME would respond more promptly to our interests.
     
    AndyPR likes this.
  7. BurnA

    BurnA Senior Member

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    Do you know which thread this is?
     
  8. Binkie4

    Binkie4 Senior Member

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    @BurnA

    Can I come back to you tomorrow @BurnA? Off to read Osler's web which is my way of going to sleep. Two medical appointments tomorrow. Haven't yet sorted out index. Perhaps @AndyPR remembers. Awfully sorry am too tired tonight.
     
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  9. AndyPR

    AndyPR Senior Member

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  10. Binkie4

    Binkie4 Senior Member

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    @BurnA @AndyPR

    I knew Andy would be quicker than me but only by a moment. I used an index.
     
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