1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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For those who want to submit written public comment for IOM meeting

Discussion in 'Institute of Medicine (IOM) Government Contract' started by Denise, Jan 15, 2014.

  1. Denise

    Denise Senior Member

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    IOM has said: “It would be most useful if comments are focused on the following question: “What is the most important aspect or information that this committee should consider throughout the course of the study?”

    Anyone can submit written comment to the meeting. (No limit on length.) What are you going to tell them?

    If you submit by Jan 22nd the committee will get a copy of them before the meeting on Jan 27. Use this email address – mecfsopensession@nas.edu. Comments submitted after Jan 22 will still go to the committee, but possibly not until after the meeting.

    All comments go into the public access file.

    Additional info: http://iom.edu/Activities/Disease/D...elitisChronicFatigueSyndrome/2014-JAN-27.aspx

    After January 27, send written comments to the project email address (mecfs@nas.edu).

    Reminder -the Statement of Work for this project – obtained by Ms Spotila – can be seen here: https://dl.dropboxusercontent.com/u/57025850/MECFS IOM SOW.pdf .

    The tentative agenda for the January 27th, 2014 open session of the meeting on Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.
    justinreilly, jspotila and Chris like this.

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