Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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For people around London - free talk by Prof Newton and Jason Ellis Tue 26th May 2015

Discussion in 'Upcoming ME/CFS Events' started by eafw, Apr 27, 2015.

  1. eafw

    eafw Senior Member

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  2. worldbackwards

    worldbackwards A unique snowflake

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    There was talk about Julia Newton not being entirely on-side, so I'd be interested in what she has to say in that sort of environment.

    Surely for a POTS expert, 'standing up for fatigue' is a bit of a bad pun.
     
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  3. eafw

    eafw Senior Member

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  4. Eeyore

    Eeyore Senior Member

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    I've been generally impressed with Dr. Newton's work, and follow it regularly. If I were in the area I'd certainly go listen to her (although that's a transatlantic flight for me).

    She's doing some good basic science, although she is focused on fatigue, which I've never really though is a very important part of ME. PEM or even exercise intolerance are important, but "fatigue" is too general. Still, she is looking at muscular fatigue a lot, which is interesting - not just doing banal surveys asking people if they feel tired. A lot of her work is also focused on primary biliary cirrhosis, a disease that is generally believed to be unrelated to ME (it's an autoimmune disease that causes extreme fatigue, although I suspect it's more through the same mechanisms that cause fatigue in patients with liver failure - but I'm far from an expert on PBC). She's generally interested in how we define fatigue and what it means, and if it's mediated through final common pathways in diverse diseases. She does high quality science though, and it's all psychobabble free - so she's worth listening to.
     
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