Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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FOI charges ruled out after review

Discussion in 'General ME/CFS News' started by TiredSam, Mar 1, 2016.

  1. TiredSam

    TiredSam The wise nematode hibernates

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  2. A.B.

    A.B. Senior Member

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    Does this mean that White's campaign to exempt universities from the FOIA has failed?
     
  3. TiredSam

    TiredSam The wise nematode hibernates

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    I have no information other than the article. The BBC chose to lead with the headline about charges, probably because that's what they think most of their readers are most concerned about. But if the minister says "we will not make any legal changes" then my hopeful interpretation is that that must include university exemptions, because that would be a legal change? I expect as the scientific media report it someone will spell it out for us.
     
  4. Stewart

    Stewart Senior Member

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    This seems like good news - but I think all the articles so far have been based on the UK Government's pre-briefings. It sounds good, but we need to check the report when it's published later today to make sure there are no unpleasant surprises hiding in the detail. If the Government *had* decided to grant some FoI exemptions for research institutes they certainly wouldn't highlight this point in press releases that were designed to produce positive headlines.
     
  5. Simon

    Simon

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    Interesting comment on the BBC website:
    FOI Commission: Why has it surprised observers? - BBC News
     
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  6. Bob

    Bob

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    Last edited: Mar 1, 2016
    John Mac, Johannawj, TiredSam and 9 others like this.
  7. jimells

    jimells Senior Member

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    http://www.bbc.com/news/uk-35693236

    I haven't read the details yet. The PACE people are quickly reaching the end of the road on releasing the data. It has been clear that they have been lobbying for changes and that their strategy is to delay, delay, delay while attempting to change the law. That strategy is now dead. Anybody have an idea what they might try next?

    I wonder if this means the insurance industry is finally cutting these people loose. In the US, powerful industry lobbies get changes to laws all the time. It's how the place works. I imagine in the UK it is similar.
     
  8. Stewart

    Stewart Senior Member

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    I think Plan A will be to get the Information Commissioner's judgement from last October overturned (if they can). It looks like Plan B is establishing the 'robust trusted independent system to protect anonymity' that Wessely tweeted about at the end of January (and which the Bishop/Lewandowsky 'Nature' article seems to have been preparing the ground for). In other words, a new body with a fresh veneer of respectability which will use concerns about patient confidentiality to justify refusing data requests.
     
    Last edited: Mar 1, 2016
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  9. Dolphin

    Dolphin Senior Member

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  10. JohnCB

    JohnCB MEow

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    This blog from Coyne yesterday is largely cut and paste of stuff I have already seen, mostly from news sources such as BBC.
     

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