Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
Discuss the article on the Forums.

flordicortisone

Discussion in 'General Treatment' started by por-cel19, Feb 1, 2016.

  1. por-cel19

    por-cel19

    Messages:
    37
    Likes:
    6
    Hot Springs AR
    Dr switched me to this plus the midodrine but I'm not gonna take that again what I want to know is do I need potassium supplements since this is at 0.1 mg per day? And any side effects i need to watch out for?
     
  2. Gingergrrl

    Gingergrrl Senior Member

    Messages:
    10,247
    Likes:
    29,376
    USA
    Your question is confusing but with Florinef you are supposed to supplement Potassium. I had horrible side effects from Florinef even at 1/4 of the dose you are taking but I do very well with Midodrine.
     
  3. por-cel19

    por-cel19

    Messages:
    37
    Likes:
    6
    Hot Springs AR
    what side effects did you have?
     
  4. Gingergrrl

    Gingergrrl Senior Member

    Messages:
    10,247
    Likes:
    29,376
    USA
    I had daily severe headaches and intracranial pressure from Florinef which is not at all a normal symptom for me. It never raised my BP as it was supposed to and in general I just felt sick and horrible on it. It also contained two yellow food dyes (which I later became severely allergic to when I developed MCAS) and am not sure if this played any role in my specific case but suspect it didn't help.
     
  5. Sushi

    Sushi Moderation Resource Albuquerque

    Messages:
    14,810
    Likes:
    22,510
    Albuquerque
    So did I...but for many it works well. Potassium should be monitored though.
     
    Gingergrrl likes this.
  6. por-cel19

    por-cel19

    Messages:
    37
    Likes:
    6
    Hot Springs AR
    well took it first time 4 hours ago I don't feel anything so I guess I'm ok
     

See more popular forum discussions.

Share This Page