The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
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flordicortisone

Discussion in 'General Treatment' started by por-cel19, Feb 1, 2016.

  1. por-cel19

    por-cel19

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    Hot Springs AR
    Dr switched me to this plus the midodrine but I'm not gonna take that again what I want to know is do I need potassium supplements since this is at 0.1 mg per day? And any side effects i need to watch out for?
     
  2. Gingergrrl

    Gingergrrl Senior Member

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    Your question is confusing but with Florinef you are supposed to supplement Potassium. I had horrible side effects from Florinef even at 1/4 of the dose you are taking but I do very well with Midodrine.
     
  3. por-cel19

    por-cel19

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    Hot Springs AR
    what side effects did you have?
     
  4. Gingergrrl

    Gingergrrl Senior Member

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    I had daily severe headaches and intracranial pressure from Florinef which is not at all a normal symptom for me. It never raised my BP as it was supposed to and in general I just felt sick and horrible on it. It also contained two yellow food dyes (which I later became severely allergic to when I developed MCAS) and am not sure if this played any role in my specific case but suspect it didn't help.
     
  5. Sushi

    Sushi Senior Member Albuquerque

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    So did I...but for many it works well. Potassium should be monitored though.
     
    Gingergrrl likes this.
  6. por-cel19

    por-cel19

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    Hot Springs AR
    well took it first time 4 hours ago I don't feel anything so I guess I'm ok
     

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