Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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FITNET trial: University of Bristol student newsletter reports……...

Discussion in 'General ME/CFS Discussion' started by charles shepherd, Nov 3, 2016.

  1. charles shepherd

    charles shepherd Senior Member

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    Dolphin, Marky90, barbc56 and 11 others like this.
  2. Yogi

    Yogi Senior Member

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    I recalled that there was a Bristol university student who had recently done a good piece on ME. I was hoping a response could be done to the FITNET propaganda of yesterday.

    It is Hannah Price. Good article. Nice to see the student newspapers being more accurate than the mainstream press who are under the influence of SMC.

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    I would only add that the misleading headlines are not accidental. This happens continually with ME stories. They have the Science Media Centre who deliberately in conjunction with Esther Crawley and Stephen Holgate spin these. Simon Wessely is also the trustee of SMC.



    Thanks Hannah Price for this:). Amazing girl:thumbsup:
     
    Last edited: Nov 3, 2016
  3. Snowdrop

    Snowdrop Rebel without a biscuit

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    Kudos to Hannah Price. It's good to see a response to the propaganda machine.

    I have been thinking (or at least trying) and just as a general comment to responding to UK media misinformation I'd personally like to see the narrative move to NOT talking about whether this is a physical illness or not--because no-one is disputing that. I's like to see more on the difference between the ME community and BPS as BPS sees CBT as helping cope but it's really about believing that the mind is perpetuating an illness that was once physical. To me this is an important distinction.

    And I wish that more could be said about the research happening in the US/Norway/Australia although it may be tough to get this past media gatekeepers.
     
  4. Sean

    Sean Senior Member

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    No question about that.
     
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