1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Institute of Medicine (IOM) Review of ME/CFS Clinical Definition: First Open Meeting
Gabby Klein provides a useful summary of what was a very important, and quite extensive, IOM open meeting. US Government representatives, patient organizations, advocates and individual patients all made formal presentations...
Discuss the article on the Forums.

First Public Presentation by WPI Researchers

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by Cort, Oct 17, 2009.

  1. Cort

    Cort Phoenix Rising Founder

    Messages:
    7,025
    Likes:
    423
    Raleigh, NC
    The first public presentation by WPI researchers will take place at the University of the Pacific in Stockton California (home of the Pacific Fatigue Lab on Oct 26th.

    http://web.pacific.edu/x31783.xml
  2. hvs

    hvs Senior Member

    Messages:
    292
    Likes:
    0
    Whoa, can we all please email them at rwolf@pacific.edu and ask for a webcast?
    I think many thousands of people want to hear this!
    [Reposting at Advocacy]
  3. Cort

    Cort Phoenix Rising Founder

    Messages:
    7,025
    Likes:
    423
    Raleigh, NC
    They want to do a video cast at least and are trying to scrounge the money to do that. A webcast - that would be nice!
  4. KC22

    KC22 Senior Member

    Messages:
    158
    Likes:
    2
    Ohio
    I would love to see this. Hopefully, they can get a webcast..

    Does anyone live nearby that could attend???

    The last week of October is going to be a very informative week for us!!!:)
  5. hvs

    hvs Senior Member

    Messages:
    292
    Likes:
    0
    To rwolf@pacific.edu

    "Dear organizers, Lombardi and Mikovits presentation,

    I write to ask that you please consider webcasting the Oct. 26th presentation. These researchers' work is fascinating from a medical science point of view, but from the perspective of those of us suffering from the disease it is even more vital.

    It is an honor for the University of the Pacific to host the first appearance of Mikovits and Lombardi since the publication of their groundbreaking paper. It would make good sense for the university to draw attention to that honor via a live webcast.

    Thank you,

    NAME."
  6. Dreambirdie

    Dreambirdie work in progress

    Messages:
    4,833
    Likes:
    2,717
    N. California
    They could Skype it couldn't they. I think that's not too hard to do.
  7. dannybex

    dannybex Senior Member

    Messages:
    2,111
    Likes:
    476
    Seattle
    Simple solution...

    While a webcast or Skype would be nice, someone who works there must have a video camera, or access to one, so they can tape it, and put it on youtube.

    That wouldn't cost a dime and could be watched by millions more around the world...

    ???
  8. mezombie

    mezombie Senior Member

    Messages:
    324
    Likes:
    19
    East Coast city, USA
    University of the Pacific WPI presentation--anyone attending?

    Great idea, Dannybex!

    I think there's a limit on the length of videos posted on YouTube, but that isn't insurmountable. One can split the video into smaller ones and post them sequentially. I've watched other videos that were posted in this manner on YouTube.

    Is anyone here able to attend and perhaps videotape this presentation?
  9. dannybex

    dannybex Senior Member

    Messages:
    2,111
    Likes:
    476
    Seattle
    Thanks Marie. I would guess that the taping of it has already been set up, or will definitely be set up by multiple news outlets, etc. They know the world is watching and waiting to hear the latest on this.

    And yes, the videos are often broken up into 10 minute segments on youtube, but I've seen ones that are an hour or longer lately. They just take for-EVER to load, at least if you don't have cable modems...

    Our local support group meeting is the next day, so of course I'm hoping that it will be posted on Youtube overnight! :)
  10. srmny

    srmny

    Messages:
    81
    Likes:
    0
    email reply from pacific.edu

    Hi,

    Did anyone else get a reply from Rachel at pacific.edu? It seems I got an invitation? It is too long a trip for me from Atlanta but it would be nice if one of us could go. Before I write a thank you I thought I would ask everyone what I should say?

    srmny


  11. InvertedTree

    InvertedTree Senior Member

    Messages:
    157
    Likes:
    5
    I plan on attending and have RSVP'd.

    I'm trying to get ahold of a video camera so I can record it.

    I'm crossing my fingers that I'll be physically able to attend. Luckily I have a ride down there (it's about 90 minutes from where I live) or I wouldn't be able to go.
  12. srmny

    srmny

    Messages:
    81
    Likes:
    0
    Pacific.edu

    Hi Terri and Levi,

    That's great that you guys can go! I hope you will be able to record the presentation. It was really nice that Rachel invited us - I will be sending my regrets this afternoon.

    srmny
  13. Cort

    Cort Phoenix Rising Founder

    Messages:
    7,025
    Likes:
    423
    Raleigh, NC
    Glad we have some people going! I was just informed that - although it wasn't easy - Staci Stevens was able to get the video crew at the University to record the event so will have both Dr. Lombardi'sand Dr. Peterson's presentations to look forward to. :D
  14. Summer

    Summer Senior Member

    Messages:
    175
    Likes:
    0
    Cort, that's great news about the video!!! :D
  15. hvs

    hvs Senior Member

    Messages:
    292
    Likes:
    0
    Excellent.
  16. dasiymay

    dasiymay Senior Member

    Messages:
    245
    Likes:
    178
    conference video

    Brilliant news, thanks Cort
  17. dannybex

    dannybex Senior Member

    Messages:
    2,111
    Likes:
    476
    Seattle
    Last minute...

    ...but I emailed them and asked if they could post the video on Youtube.

    That way people without cable modems who won't be able to watch it live, can watch parts of it at a later date.

    d.
  18. garcia

    garcia Aristocrat Extraordinaire

    Messages:
    924
    Likes:
    70
    London, UK
    Will anyone be watching it live? It is being videoed but nothing said about it being webcast. Presumably they will put it online later on.
  19. dannybex

    dannybex Senior Member

    Messages:
    2,111
    Likes:
    476
    Seattle
    Just wondering...

    ...if anyone has an update?
  20. hvs

    hvs Senior Member

    Messages:
    292
    Likes:
    0
    I'm champing at the bit for this...

See more popular forum discussions.

Share This Page