Not at all. There is complete misunderstanding here. Jen was not censored. In fact the opposite has happened. She was doing a great job, prior to being pressured to change her terminology. [/Quote="Ember"] With all due respect, ME patients don't receive favourable treatment now, yet many covet that diagnosis while dismissing the cost should others unfortunately lose theirs.[/quote] Whoever said anything about dropping ME? The goal is to get to ME. Nobody knows what ME is. (Except advocates) The bridge to get there is the imperfect MEcfs. To even get to a real non IoM table, or even discredit the current IoM report) we need a movement. We won't get a movement if we don't understand our own message, and our needs to get non ME or non CFS people informed. I call it second tier in respect, not disdain.