1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Give ME the Money
Graham McPhee spells out some of the cold, hard facts about the dismal state of ME research and politics, and has some suggestions as to what we can do about it ...
Discuss the article on the Forums.

Finding a good Lyme doctor

Discussion in 'Lyme Disease and Co-Infections' started by Lotus97, Jan 21, 2014.

  1. Lotus97

    Lotus97 Senior Member

    Messages:
    2,015
    Likes:
    423
    United States
    I found a Lyme doctor using this website: http://www.lymediseaseassociation.org/
    I also found a few doctors from this website: http://www.ilads.org/

    So far we've only checked on one doctor because he was closer than all the rest. However, he costs $370 an hour and the first two appointments are 2 hours each. This seems kind of expensive, but we also don't want to travel long distance either.
     
  2. Christopher

    Christopher Senior Member

    Messages:
    482
    Likes:
    188
    Pennsylvania
    do you have lyme?
     
  3. Lotus97

    Lotus97 Senior Member

    Messages:
    2,015
    Likes:
    423
    United States
    I haven't been tested, but I've had a recurring rash where I was bitten by a tick. Part of the reason I haven't gotten tested was because I've heard tests aren't that accurate.
     
  4. Lotus97

    Lotus97 Senior Member

    Messages:
    2,015
    Likes:
    423
    United States
    I just went to a doctor. He wasn't specifically a Lyme doctor, but we found out about him from a friend of a friend who I think has Lyme. The doctor does seem to specialize in treating chronic illness in general. He seemed more like a salesman than a doctor.

    I think probably his treatments work, but he seems like he wants to do his special protocol rather than focusing on Lyme. He also didn't seem to think that treating my hormones and using LDN (two other things I think are important) would be enough. He was very vague about everything.

    It was a free consultation, but I don't see the point in driving 5 hours just to get the run around. It sounds like a very long drawn out treatment plan which I know is likely with my situation and others, but I want to keep costs down. He also has his own supplement brand. Of course Dr. Horwitz is doing the same thing now with supplements.

    I really don't know what to do. There's another doctor who we called to find out how much she charges and she called and left a message telling us to check her website, but we couldn't find information on her website about that and she didn't respond to our email. I really don't trust companies with poor customer service and this is sort of the same thing. I'm not sure what to do.
     
    Last edited by a moderator: Feb 20, 2014
  5. SOC

    SOC Senior Member

    Messages:
    5,367
    Likes:
    6,465
    USA
    @Lotus97
    I have some acquaintances with several family with Lyme. They have a LLMD in Iowa or Missouri that they really like. He seems very sensible and practical and not into selling his own product, from what I'm hearing. If that would help you any, let me know and I'll look him up.
     
  6. Lotus97

    Lotus97 Senior Member

    Messages:
    2,015
    Likes:
    423
    United States
    Thanks. I appreciate it. I live in Ohio though. I'm seriously considering checking out doctors in adjacent states though. It's pretty hard traveling and I'm not sure my parents want to drive far either, but the person we just went to was 2.5 hours each way. Even longer with traffic. Maybe it will be worth the extra drive.
     
    SOC likes this.

See more popular forum discussions.

Share This Page