1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Never Ask Us if We're Hungry -- The Answer's Always No
There are three of us here and for many years, none of us ever got hungry. When our brains would turn to mush, when our faces would go numb, and we would start the invisible vibration which is the signature dance of ME/CFS, we knew we needed to eat.
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Fibromyalgia

Discussion in 'Fibromyalgia' started by roxie60, Nov 13, 2012.

  1. roxie60

    roxie60 Senior Member

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    Central Illinois, USA
    Anyone with CFIDS/ME/CFS also diagnosed with Fibromyagia?

    If have fibro how did they determine you had fibro? What questions or tests were performed that indicated you had fibro? Muscle aches/pains? Joint pain? I know there is sometimes overlap.
  2. ukxmrv

    ukxmrv Senior Member

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    London
    I was diagnosed using the old ACOR criteria. A rheumatologist examined me and he used a pressure device on my skin to check for painful points.

    Have a feeling that since then the ACOR may have out out a new criteria (or talked about a new one anyway?)
    roxie60 likes this.
  3. voner

    voner Senior Member

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    Here is a reference to the new guidelines for Diagnosing fibromyalgia:

    http://www.fibromyalgia.com/articles/item/26-criteria-new-2010-criteria
    roxie60 likes this.
  4. nanonug

    nanonug Senior Member

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    Virginia, USA
    Roxie, if you are also expeirnecing fribomyalgia, together with your previous systems, I think there is a decent chance you might be affected by Mast Cell Activation Syndrome. Have a look at Table 1 of the following document and see how many symptoms from different categories you are a "match" for:

    Polycythemia From Mast Cell Activation Syndrome: Lessons Learned
  5. roxie60

    roxie60 Senior Member

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    Central Illinois, USA
    I did take a look Nano and I do have many of the symps. I have printed a copy and need more time to digest the paper and see if my Dr would be inclined to do anything with it.

    Thanks eveyone for the replies

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