Misfit Toy
Senior Member
- Messages
- 4,178
- Location
- USA
This week has been horrible for me pain wise. I have been working a lot and leaning over so maybe that is the reason. Having said that, the pain actually fuels me to work more out of a need to distract.
Or, perhaps it's the weather. The worst time of year for me is spring/summer as far as pain. Summer and winter.
A lot of people on here love opiates, or they enjoy how it helps them overall. Not just the pain, but the CFS. For me, opiates make me feel awful. I have horrible itching. I take tramadol only to be up all night due to itching and then it just makes my mind wonder. I feel drugged and with how much? 1/2 a tramadol. That's crazy! Ultram does nothing for me pain wise but brings on a million side effects.
What does help...sort of? Fentanyl, but I become drugged, like completely drugged from fentanyl. No itching though, but no sleep either. Interestingly though, Fentanyl ends up causing more pain, because it does something to the nervous system and makes me tense up. It totally messes up my brain. I become agitated and angry. I become livid on most opiates. They rev me up and make me react. Really react.
I miss DARVOCET. The #1 drug of choice for this. I had no side effects, could sleep great and go about my day. Not anymore. Does anyone know if it is available anywhere? I have looked everywhere. Online that is.
I have tried all opiates with no help. Dilaudid, morphine, make me vomit and itch. Demerol is the worst. Codeine...forget it. Benadryl doesn't even stop the itching with codeine.
I take 800 mig of ibuprofen, I am on Lidocaine patches. I take baths, used magnesium body spray from ancient minerals....nothing helps like darvocet did.
Just shoot me.
The other day I realized how much pain I have by touching my arm. just putting a finger to my arm and poking it. What pain that caused.
I didn't develop fibro until 14 years into this illness. That really bothers me. WHY? Why did it come on? I just got done with endometriosis and then....in comes fibro. JESUS. Yup. That's how I feel. God, are you up there? Give me a break. The endo just about killed me literally and now this.
I was thinking why I can't vacation well anymore. It's because of fibro. If the bed isn't right, the pillow isn't right, if I don't have my million meds and supplements, my heating pad, my fibro will destroy any kind of vacation. I need a whole other suitcase for all of my fibro stuff that I "must" have.
A vent. A much needed pain vent.
Or, perhaps it's the weather. The worst time of year for me is spring/summer as far as pain. Summer and winter.
A lot of people on here love opiates, or they enjoy how it helps them overall. Not just the pain, but the CFS. For me, opiates make me feel awful. I have horrible itching. I take tramadol only to be up all night due to itching and then it just makes my mind wonder. I feel drugged and with how much? 1/2 a tramadol. That's crazy! Ultram does nothing for me pain wise but brings on a million side effects.
What does help...sort of? Fentanyl, but I become drugged, like completely drugged from fentanyl. No itching though, but no sleep either. Interestingly though, Fentanyl ends up causing more pain, because it does something to the nervous system and makes me tense up. It totally messes up my brain. I become agitated and angry. I become livid on most opiates. They rev me up and make me react. Really react.
I miss DARVOCET. The #1 drug of choice for this. I had no side effects, could sleep great and go about my day. Not anymore. Does anyone know if it is available anywhere? I have looked everywhere. Online that is.
I have tried all opiates with no help. Dilaudid, morphine, make me vomit and itch. Demerol is the worst. Codeine...forget it. Benadryl doesn't even stop the itching with codeine.
I take 800 mig of ibuprofen, I am on Lidocaine patches. I take baths, used magnesium body spray from ancient minerals....nothing helps like darvocet did.
Just shoot me.
The other day I realized how much pain I have by touching my arm. just putting a finger to my arm and poking it. What pain that caused.
I didn't develop fibro until 14 years into this illness. That really bothers me. WHY? Why did it come on? I just got done with endometriosis and then....in comes fibro. JESUS. Yup. That's how I feel. God, are you up there? Give me a break. The endo just about killed me literally and now this.
I was thinking why I can't vacation well anymore. It's because of fibro. If the bed isn't right, the pillow isn't right, if I don't have my million meds and supplements, my heating pad, my fibro will destroy any kind of vacation. I need a whole other suitcase for all of my fibro stuff that I "must" have.
A vent. A much needed pain vent.