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Fibromyalgia as dysautanomia?

Discussion in 'Fibromyalgia' started by Shell, Sep 15, 2012.

  1. Shell

    Shell Senior Member

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    I have just read this article by Dr Martinez-Lavin a cardiologist who makes the interesting suggestion that fibro is a form of autonomic dysfunction.
    Anyone have thoughts on this or know of any studies or research?
    I am wondering if it would explain the mast cell dysfunction findings and the high incidence of heart problems with those of us with FM as a primary dx. There's some anecdotal evidence that the biggest cause of death in FM patients is sudden heart attack or stroke.
    THIS PAPER says more on it

    I have to say that this seems to make sense to me, but I wonder if that's just because I so very much would like to have an easy to grasp understanding of the what the heck is happening to me.
    Any thoughts?
    MishMash and Allyson like this.
  2. xks201

    xks201 Senior Member

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    definitely. but lots of things can cause autonomic dysregulation...genes...hypovolemia...stress/burnout. that is the trick to finding out how to fix it.
    MishMash likes this.
  3. taniaaust1

    taniaaust1 Senior Member

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    Ive no idea about FM but I know that autonomic dysfunction often causes bowel dysfunction hence IBS issues and IBS is a very common coexisting thing which often happens in FM. So I guess FM being maybe some kind of autonomic disorder could make sense.
    MishMash likes this.
  4. Allyson

    Allyson *****

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    Hey Shell , you miihgt be interested in the thread I created on another part of the site when I did nnot know about this OI POTS section
    http://forums.phoenixrising.me/inde...rome-stretchy-veins.20351/page-13#post-320077

    would love to get your comments and feedback on it

    funny all of my family seem to die of strokes and hart attacks - I have ME but not FM, and amny of may family members have it too - most undiagnosed, many dead,

    cheers,
    Ally
    MishMash likes this.
  5. Allyson

    Allyson *****

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    http://forums.phoenixrising.me/inde...rome-stretchy-veins.20351/page-13#post-320077
  6. Allyson

    Allyson *****

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    sorry for repeating my post; i was unable to edit and wanted fto ensure link was correct.
  7. Allyson

    Allyson *****

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    your link to the paper did not work for me shell, could you re-post it please.
    thanks
  8. Allyson

    Allyson *****

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    I think if you find the cause though first a fix will come later.

    Though aoutologous stem cell tranplants from abdo fat seem to fix many things without us understanding fully why they do. It is now boing treid for ME ... see post on the Not Crazy forum.
    I wonder if the forced inactivity we suffer leads to type 2 diabeties, weight gain and then stroke and heart attack as the result of that.
    MishMash likes this.
  9. Shell

    Shell Senior Member

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    Fmpartnership.org where I got the papers from seems to have taken everything down while they re-vamp their website. I'll check it out again after Christmas and see if they've put it up again. If not, I'll see if I can find it elsewhere.
    In a crash right now - pretty yuk - so not up to much.
    I'll get back to this.
    Sorry for the delay.
    Allyson likes this.
  10. Allyson

    Allyson *****

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    Hi Shell,

    intersting topic indeed but the links do not open for me; would you be able to re-post if you still have the article please.
    Thanks
    Ally
  11. SickOfSickness

    SickOfSickness Senior Member

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    I believe strongly that the same causes of FM also cause dysautonomia, so they are very commonly together, but I feel that someone could have FM with varying levels of dysautonomia. Or dysautonomia with varying levels of FM, or no FM.
  12. Allyson

    Allyson *****

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    I disagree, I think you need to know the cause first - or a t least it helps

    eg hypvolaemia - low blood volume would be quite a different cause from defective or stretchy veins and each would require a different treatment to cure it
  13. Shell

    Shell Senior Member

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    Found the one paper on the Wayback machine HERE IT IS

    And HERE;'s the OTHER ONE thanks to the Wayback Machine as well.

    Happy Christmas one and all.

    Allyson I think we need to get to the root of the causes for all this too. Otherwise treatment is all in the dark.

    OFFERUtah have a lot of video lectures on FM and ME/CFS

    It seems rare that Mast Cells get a mention but I have a sneaky feeling that is at the base of the multitudinousity (my very own neologism!) of the disease. But as Ally suggests something caused it. I don't believe that things happen without a cause. Nothing "just happens" that's lazy balony. If we can find out what has happened we can surely start doing things - or stop doing things- that stop it happening.
    Is it genetic? (my oldest son has type 1 diabetes, my third son is blind in one eye from a caterract and has very high tone in his legs causing him to walk on tiptoe all the time. My second daughter is gluten intolerant (I suspect cealiac actually but as usual can't get the proper dx tests done for her). That's 3 out of 6 of my children with unusual things wrong.
    Doctors are incapable of taking full histories these days so any familial link is never considered.
    Perhaps researchers can step in where doctors no longer seem capable- and take a proper history from patients. Then maybe some answers would begin to show.
    Allyson likes this.
  14. Allyson

    Allyson *****

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    Hey Shell,

    thanks so much for going to that trouble;
    they can now do a simple gene test to rule out coeliac.

    you go to GP for an initial blood test - mine was negative, many of these are inacurate

    at a specialist clinic then a great specialist here in Aus - Dr Jason Tye-din - asked a lot of questions; thought i was non - coeliac gluten intolerant, did the blood test for the coeliac gene and found there was a 99.8 per cent chance I did NOT have the coeliac gene - so chances of me being coeliac were nebligible.


    as far as family history, you may wan to wade through the post on another thread for more on that esp regarding first degree ralative and ME
  15. Allyson

    Allyson *****

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    Shell , It is interesting to note that Martinez says in this 2001 paper:

    I am convinced that scientific evidence will eventually disprove FM non-believers. Both patients and heath care providers have to be daring and move away from the decrepit medical paradigm that views any illness without obvious structural damage as non-existent or as belonging to the realm of psychiatry.



    !!! So that is what they were thinking all those years we were so ill and not getting any treatment!

    And that is why some doctoers still give that weird look when they hear "cfs" !

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