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Fecal Transplants

Discussion in 'The Gut: De Meirleir & Maes; H2S; Leaky Gut' started by Misfit Toy, Mar 20, 2013.

  1. Elph68

    Elph68 Senior Member

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    Hi everyone, let me bring to you the real truth on FMT. I am a patient with the CDD in Sydney Australia, they are the world leaders in this therapy. FMT does not cure ME/CFS, do not waste your time. What cures ME/CFS is the antibiotics they use before the FMT. The antibiotics kills everything that are potentially pathogenic. Then the FMT, replaces what has been killed with supposedly good bugs.

    Currently I am in their program, and their first attempt to cure this is via antibiotics only, and this is the regime I am going to start next week.

    For 1 month it is Vancomycin+ Augmentin Forte + Ciprofloxican + Azithromycin

    I know the bugs that are causing this are resistant to all of these except vancomycin. That is why they are using triple+ antibiotic therapy.

    I am going to list all my symptoms and I will post what happens ..... I have chronic prostatitis, chronic sore throat, swollen glands in my neck, geographic tongue, mouth ulcers, urethritis, balanitis, psoriasis, oozing sores, brain fog, insomnia, IBS, blurry vision, ringing ears, pins and needles in arms and legs, burning feet and hands, painful joints, post exertional fatigue, a body that feels like lead at times and various other 'conditions' that you are all more than aware of.

    I really would like everybody to realize, FMT does not cure this and it is very dangerous to do it at home as you are at extreme risk of catching further infections such as proteus mirrabillus, golden staph and VRE, to name a few.

    I will keep you posted as to how this goes.
     
    Last edited: Nov 27, 2013
    Hanna, aimossy, maryb and 3 others like this.
  2. Sparrowhawk

    Sparrowhawk Senior Member

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    Wow thanks for the overview and the preliminary report. Do please keep us posted and very best to you for the course of treatment!
     
  3. Lala

    Lala Senior Member

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    I wish you good luck, elph, let us know how you feel. Do you start all at once or gradually? This can be very strong.
    Btw: What is VRE?
     
  4. Fogbuster

    Fogbuster Senior Member

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    More good luck and positivity being sent your way! :)
     
    Elph68 likes this.
  5. Elph68

    Elph68 Senior Member

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    Hi Lala .... this starts all at once .... VRE means Vancomycin Resistant enterococcus .... cheers
     
  6. Kimsie

    Kimsie Senior Member

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    I don't have time to read through this whole thread so maybe someone else has already answered this question. Yes, you can. You mix it with water and filter out the solids first.

    Another method is to get O and OO gelatin capsules and quickly fill the O capsules and close and immediately put the O capsule into a OO capsule for a double layer. It helps to have two people working, because they only last a couple of minutes and you can only make about 5 before you have to swallow them. Try to take about 20 on a pretty empty stomach with a little baking soda to reduce the acidity and do it again in a few hours. Make the mixture pretty concentrated and strain through some cheesecloth. That's how we did it. We did the enema, too. We also prepared by doing GAPS diet for a couple of months first, but I don't know if that is needed or not. He stopped doing GAPS before the fecal transplant so that the good bacteria have the food they need to multiply.

    We just did this on my son who has depression from histamine producing bacteria two days ago and today he can't take the usual dose of niacin without getting nauseated, so I am pretty sure it is working because the niacin isn't getting used up. We will try it on our other son who has schizophrenia, too, after he water fasts for a week or so to weaken the histamine producing bacteria. We can control his symptoms pretty well with supplements, but it would be better to get down to the root cause.

    The donor is a 13 year old boy from a trusted family. The parents are into healthy eating and supplements so they were open to the idea and the boy was fine with it. He has never had antibiotics in his life!
     
    South likes this.
  7. Elph68

    Elph68 Senior Member

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    I need to report after a week my brain fog has gone, the feeling my body is made of lead is gone, I can move around again as normal, my gut is all blown up and these horrid random pins and needles all over the place has become a lot worse ....
     
    aimossy likes this.
  8. Lala

    Lala Senior Member

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    That is great, hopefully pins and needles will improve too, with litlle bit longer time.
     
  9. Soundthealarm21

    Soundthealarm21 Senior Member

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    Dallas, TX

    Oh my goodness I'm dying of laughter. I needed that.
     
  10. JT1024

    JT1024 Senior Member

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    I can't participate as I would like so please forgive me if my post is redundant or no longer relevant to this thread.

    Fecal transplants have been successful in treating C.diff and I know of two patients that have benefited from this treatment.

    One received a transplant from his wife. The other participated in a clinical trial in Boston that provided the fecal transplant via a capsule. The source of the transplant was a healthy child.

    Since hearing from my mother how appreciative one family was to learning about the capsule treatment and its success, I checked the clinical trial out online. There is the possibility that this treatment may become more widely available in the near future.
     
    aimossy likes this.
  11. knackers323

    knackers323 Senior Member

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    Anyone know where to get the fecal capsules?
     
  12. drewmaster

    drewmaster

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    Hi Elph68! Can you give us an update on how you are doing? Thanks and Happy Holidays!!

    Drew
     
  13. South

    South Senior Member

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    Silverblade, you may do well to heed the advice in your own signature. This is a well researched therapy. You sound as if you are making fun of it the way a small child would.
     
  14. SilverbladeTE

    SilverbladeTE Senior Member

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    Somewhere near Glasgow, Scotland
    *face palm*
    The battle isn't truly lost, until you can't crack a joke, even as the gates of hell yawn open.
     
  15. Elph68

    Elph68 Senior Member

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  16. Tracy54a

    Tracy54a

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  17. Tracy54a

    Tracy54a

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  18. knackers323

    knackers323 Senior Member

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    Do you mean in the innovation section?
     
  19. Elph68

    Elph68 Senior Member

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    Hi End,

    CDD use oral vancomycin and gentomycin for their FMT ..... that regime will not remove the pathogenic strains of Strep/enterococcus from the gut ..... I am trying to re-educate CDD now on how these bacteria are pathogenic and how they need to use IV drugs. See how I go ....

    Their problem is they don't believe streptococcus/enterococcus in the gut is a problem ....

    Have you had a bioscreen test http://www.bioscreenmedical.com/

    Cheers.
     
  20. Elph68

    Elph68 Senior Member

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    n
    They wanted to use doxy/azithro originally .... I said that these bugs I have are already resistant to those.

    vanco + Augmentin .... specifically targets enterococcus ... PROVIDED, it does not have high level resistance to augmentin .... cipro was for citrobacter freundi ... cipro + azithro was for prostate and sore throat ....

    They don't believe strep is a problem, they don't agree enterococcus is a problem .... Brodie doesn't like Henry Butt from Bioscreen .....

    It is the strain of strep that causes most of the problem, according to the papers I have ....

    Streptococcus mitis group .... sanguinis, parasanguins, gordonii, mitis etc.

    Considered normal flora .... but very close genetically to strep pneumonia.
     
    Sammy likes this.

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