Home care is the theme for Severe ME Day on August 8th
Why should home care be the theme on Understanding and Remembrance Day for Severe ME on August 8? Helen Brownlie of the 25% ME Group has written an explanation for Phoenix Rising ...
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Fecal Transplant DIYers

Discussion in 'The Gut: De Meirleir & Maes; H2S; Leaky Gut' started by SB_1108, Feb 27, 2014.

  1. Wayne

    Wayne Senior Member

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    Ashland, Oregon
  2. Thomas

    Thomas Senior Member

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    @globalpilot was your donor a family member? I did a fecal transplant in August 2012 under Dr. Bradstreet's protocol. We screened a friend who came up clear. In hindsight I wish I had never done it. My ME got worse 3 weeks later and has continued to decline. I can't say for sure it was the transplant that caused this, but I can't say that it wasn't either.
     
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  3. globalpilot

    globalpilot Senior Member

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    I'm sorry to hear you got worse. My donor was selected by the doctor that did my transplants - I don't know who it was.
     
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  4. LivingwithFibro

    LivingwithFibro Senior Member

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    Can someone post DIY instructions, the tests you need, etc?

    I am interested in this and have access to really healthy donors raised on organic diets, minimum pesticide exposure and a traditional diet.

    I am ailing for years now, suffering from tons of ailments.
     
  5. SB_1108

    SB_1108 Senior Member

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    The Power of Poop website really has all information about the DIY approach:
    http://thepowerofpoop.com/epatients/fecal-transplant-instructions/
     
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  6. LivingwithFibro

    LivingwithFibro Senior Member

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  7. Santino

    Santino Senior Member

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    Hello SB_1108

    I will receive FMT in Taymount clinic in May for many illnesses: Autoimmune issues, food allergies/intolerances, depression/brainfog.

    I tried nearly everything what is out there. various diets, leaky gut repair, everything. Problem is, that I can´t tolerate most supplements and foods. So my ability to test things out is very restricted.

    may question is if you did any further approaches with FMT or if you had long term benefits of it?

    And:

    What diet did you follow during FMT? Did you use any prebiotics?

    Best regards,

    Santino
     
  8. LivingwithFibro

    LivingwithFibro Senior Member

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    I didn't know you could opt for FMT if you had those issues, I thought they weren't approved until you had a life-threatening illness...

    My situation is similar to yours, I'm very sensitive.

    I think the most crucial part is finding a super healthy donor! Someone with good constitution, healthy organic diet and no use of anti-biotics, otherwise it is a pretty useless thing.

    Regarding Diet, you should ask the clinic! They'd know best but this is what I have found:
    "
    • Decide if you are going to do a bowel-washout (lavage) or not. This is not mandatory, opinions differ. The goal of a washout is to minimise the amount of old poop present at the time of infusion of the new poop. Fasting or low-fibre liquid diets can also achieve this.
      • Go on a low fibre diet for 2 weeks prior to FMT.
        • If you suffer from food intolerances and react to the donor’s food, use less FMT or ask your donor to modify their diet. A little used frequently is better than a lot used occasionally.
        • A high fiber diet will help grow your new microbiota, but don’t overdo it. If you have food intolerances don’t try anything that isn’t a known safe food, for at least 3 months after FMT and then only introduce slowly. Not all fibers agree with all people. Experiment until you find the right one.
        Read the rest here and here
     
  9. Santino

    Santino Senior Member

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    Hello Living ith fibro. Thank you for trying to help me but there is no need to help me about FMT. I know everything about it what is published and spoke to some professionals who are doing research for many illnesses.

    My question just is regarding the experience of any people who did fmt like SB_1108...
     
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  10. SB_1108

    SB_1108 Senior Member

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    Hi @Santino - Sorry I'm just responding... I took a break from Phoenix Rising for a while. I actually did two more FMTs recently. I always feel like they are helpful. I hate to be so graphic about the FMTs but for me there was definitely an improvement in consistency and smell. I would say with diet and FMTs, its almost a remission from IBS. Not a cure from ME/CFS though!

    I try to maintain a paleo/SCD/Low FODMAP diet. But I can't say that I'm that strict about it. I definitely don't eat dairy, gluten or sugar. I don't take prebiotics because I have SIBO (and prebiotics are contraindicated for those with SIBO). I've tried treating the SIBO with prescription and herbal antibiotics but like you said, I'm very sensitive to supplements. So the FMTs haven't cured my SIBO but I'm about to try Low Dose Naltrexone at the advice of my Naturopath because that is supposed to prevent SIBO and reduce ME/CFS/Fibromyalgia symptoms.
     
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  11. SB_1108

    SB_1108 Senior Member

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  12. renski

    renski

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    I'm going to try this at home, using my mum as a donor. She is healthy but will do some routine tests to I'm living with chronic insomnia (can only sleep with prescription meds), chronic depression and anxiety, abdominal pain, loss of taste/smell, fullness after eating some foods, chronic brain fog, white tongue, drugged/drunk feeling, mind racing, ringing in ears, heart racing, etc. Most of this started when I was using Candibactin AR last September and have gradually deteriorated since. I had depression/anxiety/some insomnia before this but everything became much worse after using the antimicrobial. At the time I was taking it with probiotics for several months without any major issues (except it gave me constipation), then I stopped using the probiotics for a week or so and that's when the anxiety/depression/insomnia all became much worse. I would stop taking the supplement and restart it a week or two later and find most of my symptoms would go away but it would only last a few days before things deteriorated again. I've tried antibiotics with some relief from the insomnia but I relapsed a few weeks ago while going through a stressful event. I can't take any probiotics, they all make my insomnia worse, or give some other intolerable side effect. I struggle to take any other supplements (for methylation or whatever), I feel constantly wired that it doesn't take much to add to that.
     
    Last edited: Jul 23, 2016 at 2:16 AM

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