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Feature on ME from South-Africa with among others Davis & Tuller

Discussion in 'General ME/CFS News' started by Kalliope, Feb 24, 2017.

  1. Kalliope

    Kalliope Senior Member

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    A good feature on ME from the longest running investigative journalism programme in South-Africa, Carte Blanche.

    Unfortunately it is not possible to view the video on their web-site or youtube, but it can be seen on Facebook via this link.
    https://www.facebook.com/NathalieHWilliams/videos/10156004031092619/

    It lasts approximately ten minutes and contains among others ME-cases, the criticism towards the PACE-trial, the #MillionsMissing - campaign, interviews with Ron Davis and David Tuller.

    EDIT: Hopefully Carte Blanche themselves will soon provide the video for viewers outside South-Africa, so please don't upload the video from the facebook-link on other platforms.
     
    Last edited: Feb 24, 2017
  2. Kalliope

    Kalliope Senior Member

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    dangermouse, Jo Best, Mary and 9 others like this.
  3. slysaint

    slysaint Senior Member

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  4. lnester7

    lnester7 Seven

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    Has anybody used this MitoVive that the last person uses?
     
  5. Kalliope

    Kalliope Senior Member

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    Agree. I hope Carte Blanche will share it on youtube. It will make it easier to share on different platforms.
     
    Yogi, Sushi, Comet and 2 others like this.
  6. slysaint

    slysaint Senior Member

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    I have downloaded the mp4 to my pc but not sure if we're allowed to 'publish' it elsewhere?
     
    Sushi, AndyPR and Kalliope like this.
  7. Kalliope

    Kalliope Senior Member

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    Can't find an email address to them. But they are on twitter, maybe it's possible to ask them there?
    https://twitter.com/carteblanchetv
     
    Sushi, Comet, AndyPR and 1 other person like this.
  8. alex3619

    alex3619 Senior Member

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    I put it on my Facebook page. To cover so much in a few minutes is really effective reporting.
     
  9. AndyPR

    AndyPR Senior Member

    If it was me, I'd be tempted to upload to Youtube myself but put something in the description to say that you aren't the copyright owner and are willing to remove it should there be any issue. Obviously comes down to how you feel about potentially testing how upset Carte Blanche might get.

    ETA: If you aren't making money from it I would like to think that there would be no issues from it, but obviously I can't guarantee it.
     
    Barry53, Webdog, Sushi and 2 others like this.
  10. Sasha

    Sasha Fine, thank you

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    Maybe it would stop Carte Blanche making money? I don't know. Best to approach them directly, tell them how excited we are about their coverage, and ask how we can spread it. I think they'll be pleased, and will be encouraged to do more for us.
     
    Barry53, Susanna D, Sushi and 5 others like this.
  11. slysaint

    slysaint Senior Member

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    Just got this off their website:
    [​IMG]
    23m DeviSankareeGovender @Devi_HQ
    #ME No bio-marker which means diagnosis is not made easily...people spend years not knowing what's wrong with them #CarteBlanche

    [​IMG]
    16m Serena Williams No1 @MerchSouth
    @carteblanchetv chronic fatigue syndrome so many missing and not waking up. Let's help with research #ME #CFS #understandsymptoms

    they have a form to send them news stories https://carteblanche.dstv.com/tell-your-story/
    but c an't find a general email address (I'm not on Twitter).

    Serena Williams 'let's help with research'..............anyone in the US care to follow this up!
     
  12. AndyPR

    AndyPR Senior Member

    Sadly it's a Serena Williams fan account, not the real deal.
     
    TrixieStix, Barry53, Webdog and 4 others like this.
  13. Sasha

    Sasha Fine, thank you

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    Just watched it - it's amazingly good. It's the best TV programme on ME that I can remember seeing. I'd be on my knees thanking the BBC if they did a job as good as this for us here in the UK.
     
    dangermouse, Jan, Dolphin and 8 others like this.
  14. Kalliope

    Kalliope Senior Member

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  15. Learner1

    Learner1 Professional Patient

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    Here's the link:

    http://www.metagenics.com/mp/products/mitovive

    I take all the ingredients, but in different proportions, customized to my needs. They do help.
     
  16. Jan

    Jan Senior Member

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    Can someone send this to the BBC and tell them this is how you do a thorough piece of journalism that isn't biased.
     
    dangermouse, Webdog, Sushi and 3 others like this.
  17. natwillza

    natwillza

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    I'm so glad the video is spreading far and wide! I would just like to ask that people just share the Facebook link for now, and not post it on YT. I only uploaded it to Facebook because the video on Carte Blanche's website can't be viewed outside South Africa and I had friends abroad who wanted to see it. It was just meant to be a temporary solution while Carte Blanche sorted out the issue with their website. I had no idea it would go viral!

    Since I didn't ask them for permission and it is copyright infringement, I'd hate for the video to be posted all over the place because of me. I'm just waiting for the issue to be fixed and then I'll replace the link in my post that everyone is sharing. I'm just hoping they don't ask me to take it down before they sort out their video!
     
  18. TiredSam

    TiredSam The wise nematode hibernates

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    Second ME item I've shared on Facebook, no-one bothered looking up from their cats and food pics last time, let's see if anyone notices this time!
     
  19. Kalliope

    Kalliope Senior Member

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    Thanks for giving us a chance to see the video @natwillza - and thanks for letting us know about the process.

    Let's hope Carte Blanche will give us the opportunity to view the video from their website or one of their social media platforms. We can wait - and then share widely :)

    They did a great job on the story! :woot::thumbsup:

    Edit: gosh, didn't realise until now that you're in the video, @natwillza Well done and thank you!
     
    Last edited: Feb 24, 2017
    Molly98, Barry53, Jan and 4 others like this.
  20. natwillza

    natwillza

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    I know the feeling! My mother and one of my sisters are the only ones who ever like or share any of my ME stuff... until this video of course. Then again, it's pretty much only other ME people who are sharing and commenting.

    I really hope they do make it available internationally and maybe even license it to other TV stations that might want to broadcast it. At least then more non-ME people would see it. I can't believe it's already been viewed more than 12,000 times! :jaw-drop:
     

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