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FDA should give CFS patients access to Ampligen! --Online Petition

Discussion in 'Petitions' started by JohnnyD, Dec 27, 2012.

  1. Freds

    Freds

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    I'll be sending a copy of the signature list to Robert Miller on Monday. No-one else will be getting it as far as I'm concerned. I'm considering directing other requests for the list to Mr. Miller, though we haven't discussed it yet.
  2. Sasha

    Sasha Fine, thank you

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    Thanks for the update, Freds.
  3. Sasha

    Sasha Fine, thank you

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    I got this email from Courtney Miller this morning (my bolding):

    Dear Friends,
    Someone who was moved by patient testimony at the FDA hearing on Ampligen started an online petition to the FDA, which has already gotten 2,300 signatures from patients like us. My husband Robert is planning to deliver the petition to the FDA by the February 2 approval deadline. Please join us in signing it and spreading it, so we can break 3,000 this week!

    http://www.ipetitions.com/petition/ampligen/

    The FDA Advisory panel voted that Ampligen is safe enough to market, given the serious and life-threatening nature of the illness and the lack of any approved treatments or medicines in the pipeline.

    The FDA is noticing patient involvement on this decision, which is very good for our illness. Thank you for your emails to the Secretary of Health and the FDA. Keep them coming too! This petition is important as well because the FDA hasn't gotten 3,000 signatures on our illness before.

    We can't let the FDA deny the only medication for ME/CFS in advanced clinical trials and send a message to pharmaceutical companies that it won't approve ME/CFS treatments.

    Please sign and spread it today! Thanks for your voices.

    Courtney Miller

    Reno, Nevada
  4. Freds

    Freds

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    This was changed to Tuesday (tomorrow) and I'll make every effort to get the most recent version to Mr. Miller on the day before delivery. So the delivered snapshot will most likely be in the Tuesday - Thursday range.
    Sasha likes this.
  5. Sasha

    Sasha Fine, thank you

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    2,700 signatures now - it's going up - please sign if you haven't already...
  6. Sasha

    Sasha Fine, thank you

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    2,846, looking good...
  7. Freds

    Freds

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    Mr. Miller is in DC right now. We're at 3,080.
  8. Sasha

    Sasha Fine, thank you

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    That's brilliant that we got over 3,000. Thanks for the updates and info, Freds, it's very helpful and encouraging to be kept abreast of things.
  9. dannybex

    dannybex Senior Member

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    I wonder if it might actually be approved. Very interesting that the stock price went up 21% today -- and the amount of trades went way up.

    ???
    Sasha likes this.
  10. Sasha

    Sasha Fine, thank you

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    Nico likes this.
  11. Nico

    Nico Senior Member

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    I wonder how many signatures will be required to give the FDA a much needed wake up call? Another nail biter, waiting...
  12. Sasha

    Sasha Fine, thank you

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    Yep, the waiting's killing me!

    I'll feel better if I put a diving helmet on. :ninja:
  13. Sasha

    Sasha Fine, thank you

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    4,478 signatures on the petition now...
    Nico likes this.

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