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Nitric oxide and its possible implication in ME/CFS (Part 2 of 2)
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FDA and NIH confirm WPI XMRV findings (report of leaked presentation)

Discussion in 'XMRV Research and Replication Studies' started by mingo, Jun 22, 2010.

  1. VillageLife

    VillageLife Senior Member

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    I never posted that
    mr kite! Lol
  2. jimbob

    jimbob ME/CFS84-XMRV+

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    myrtle beach, s.c.
    Still, though, WPI percentages are very high, so I think this is going to be it! yaaaaaaaaahoooooooooooo
  3. V99

    V99 *****

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    Yea that's true Mr Kite, but we are talking about a retrovirus.
  4. jimbob

    jimbob ME/CFS84-XMRV+

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    myrtle beach, s.c.
    validation

    I hope the CDC chokes on their own vomit!!!!!
  5. jimbob

    jimbob ME/CFS84-XMRV+

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    CDC and DHEC just replied back to me today, they don't have a f--king clue!!!!!
  6. VillageLife

    VillageLife Senior Member

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    I hope we can get our lives back!
  7. jeffrez

    jeffrez Senior Member

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    The association is very high, it could be very likely. I'm just saying (or, the studies actually are saying) that it's not yet proved to be the cause. It could be, for example, that exposure to a certain kind of cosmic ray causes CFS, and then because our immune systems are fucked up from the cosmic rays, it's then very easy for us to get XMRV. That doesn't mean yet that XMRV causes CFS. XMRV could be totally harmless, except for prostate cancer risk.
  8. Navid

    Navid Senior Member

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    Originally Posted by kurt
    In print at a closed conference is NOT the same as published. That information was not intended for public announcement. Therefore this is preliminary, and until a paper or public announcement appears, announced by proper channels, this is still a rumor.


    kurt...please give it a rest. let us feel happy that there may finally be a major breathru in this horrendous disease. why are you protesting sooo much!!!!

    "It feels like that to me now. The more she shouts, the more she insults, the more likely her work will fall into ruin and her work will lie in the science rubble heap."martlet quote


    looks like someone owes judy m a huge apology. this statement was incredibly rude when it was first made but in light of what we have learned today it is really depressing that a cfid's support group board moderator made such a insulting remark about the woman whose research may finally lead us to recovery.
  9. jimbob

    jimbob ME/CFS84-XMRV+

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    myrtle beach, s.c.
    yaaaaaaaaahooooooooooo!
  10. CBS

    CBS Senior Member

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    Tina,

    My bad. I'll edit my post to point to yours.

    CBS
  11. Mark

    Mark Acting CEO

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    I've been following on my phone cause I've been out tonight. So frustrating I couldn't post. Been partying in my head all night though...

    :victory::D :victory::cool::victory::D:victory:

    :sofa:
  12. jimbob

    jimbob ME/CFS84-XMRV+

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    myrtle beach, s.c.
    xmrv

    throw me a bone MrKite, let me be a little overly excited?
  13. jimbob

    jimbob ME/CFS84-XMRV+

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    myrtle beach, s.c.
    yaaaaaaaahoooooooo!
  14. Mark

    Mark Acting CEO

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    Idea for forum poll:
    Do you hate to say "I told you so" ? :D
  15. jeffrez

    jeffrez Senior Member

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    Be excited if you want, but just realize that it's premature. I know if I went to any doctor with this information, they would still say the same thing: that there's nothing they can do because there is still no proof that XMRV causes CFS. Which is true. Then they would continue implying it was some kind of psychological malady or defect.
  16. usedtobeperkytina

    usedtobeperkytina Senior Member

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    As many of you know, I am in the news media business.

    I don't know much about how news media works in Netherlands. But usually, reporters go snooping with intuition. Then they just stumble across something. They just keep coming back (if they have the time and resources to pursue it). They get a person to leak them information. And then they get confirmation (in document or second firsthand source). Then, they call someone at that agency to say, "We have this information and we are going forward with the story. We would like your comment."

    Sometimes, at that point, a reporter may be asked to hold it. It depends on the public right to know and need to know at that time compared to the benefits of waiting or harm done to release at that time as to whether the reporters go forward or hold back. Not long ago, we had case where New York Times held story of US bugging folks without judge order. They held the story for a year, at the request of Pentagon, I think. But they finally decided that it was time.

    So, I can imagine these reporters had been following the XMRV, talking to researchers. And that led them to the conference and someone leaked them the Alter presentation document. So they called the Dutch blood supply folks and said, "We have this and are going forward with the story, do you have a comment on the danger to blood supply?"

    So, the Dutch blood supply folks decided they needed to get ahead of the story and release it themselves in a press release. Do we really think they just found out about this today or last week if the comments are from May 26 and 27?

    So why now? Possibly, study about to come out (in print now) and two nosy reporters said they were going to release it before that.

    Of course, this is speculation. Isn't this fun?

    But I have to get something to eat. And I have to write two articles tonight myself.

    Tina
  17. jimbob

    jimbob ME/CFS84-XMRV+

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    Alright, I know what you're saying is true, but when you turn your back, Im gonna party like it's 2010!
  18. V99

    V99 *****

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    I posted on the comments section of the infamous BMJ xmrv podcast.

    Name give = ME
    comment = now do you believe us
  19. Wonko

    Wonko Senior Member

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    afaik there is no proof that smoking causes lung cancer - a very strong correlation but no proof - pretty sure the correlation isnt 98% either (ie that 98% of people that smoke get lung cancer)

    proof is a subjective term outside of mathematics
  20. V99

    V99 *****

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    Are the dark ages over?

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