1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
ME/CFS and the Magic of the Canine Factor
There's been plenty of research indicating that having pets is good for your health. I never really noticed any particular benefits to having cats, though that may have had more to do with my cats. They've been fairly indifferent to my presence and we've shared a live-and-let-live...
Discuss the article on the Forums.

FDA and NIH confirm WPI XMRV findings (report of leaked presentation)

Discussion in 'XMRV Research and Replication Studies' started by mingo, Jun 22, 2010.

  1. julius

    julius Watchoo lookin' at?

    Messages:
    785
    Likes:
    5
    Canada

    Thanks,

    Not sure if you can go into more detail, but, what exactly did they confirm? Any quotes possible?
  2. kurt

    kurt Senior Member

    Messages:
    1,132
    Likes:
    174
    USA.Earth
    In print at a closed conference is NOT the same as published. That information was not intended for public announcement. Therefore this is preliminary, and until a paper or public announcement appears, announced by proper channels, this is still a rumor.

    Semantics? Both were leaks. I did not say they were identical situations. Things with the CDC announcement rumor happened exactly as I explained. It was an accidental leak, picked up by Cort because I forgot to say it was confidential (which it was).
  3. Ever Hopeful

    Ever Hopeful

    Messages:
    18
    Likes:
    0
    USA
    I'm not feeling very good today, so if this comment is redundant or just super obvious pardon me, but did anyone else notice on slide 27 (the 1st un-numbered slide towards the end of the presentation) that it lists XMRV as a prioritized EID threat as of August 2009 and also says "The only barriers to rapid development and implementation of such diagnostic testing capabilities are regulatory, not technical." Regulatory, not technical??!!
  4. bullybeef

    bullybeef Senior Member

    Messages:
    476
    Likes:
    44
    North West, England, UK
    I make you right Alex, if you look at probable prevalence in other conditions that have been linked, such as autism, and GWS etc, etc that would push up the percentages. Half a billion XMRV carriers is a very scary, but real proposition, and it may take that many carriers to get the governments to act now.

    However, that kind of figure would make sense of trying to keep XMRV under wraps. The global blood supply is without question infected, and it’s also an awful lot sick mouths to feed.
  5. VillageLife

    VillageLife Senior Member

    Messages:
    674
    Likes:
    36
    United Kingdom
    I do not think virology blog would be posting this if it wasn't important!
  6. Otis

    Otis Señor Mumbler

    Messages:
    1,116
    Likes:
    115
    USA
    Yes, I found that to be an interesting (??) qualifier and would love to get a clarification on that point.
  7. Sing

    Sing Senior Member

    Messages:
    1,301
    Likes:
    421
    New England
    I wonder if part of the hold up on the official release of this information is connected with the need to have an accepted test for XMRV both for individuals and for the blood supply. Any ideas?
  8. Sing

    Sing Senior Member

    Messages:
    1,301
    Likes:
    421
    New England
    This thread ought to be merged with the first one on the identical subject. Thanks!
  9. Doogle

    Doogle Senior Member

    Messages:
    196
    Likes:
    28
    Sorry, but I don't believe a copy of a conference presentation by Dr. Harvey Alter of the NIH could be in any way considered a rumor.
  10. CBS

    CBS Senior Member

    Messages:
    1,356
    Likes:
    216
    Western US
    I was wondering if this has been an AABB priority since then ("AABB Prioritized EID Threats (August 2009)") or if it had been added later. If I'm not mistaken, there was a meeting of retrovirologists (in SF?) the summer before the Science article.

    The title of the slide is also quite interesting "Proposed RPM-EID Chip by TessArray"
  11. dannybex

    dannybex Senior Member

    Messages:
    2,135
    Likes:
    497
    Seattle
    Amazing but...

    TRUE...?

    ""The data in the Lombardi, et al Science manuscript are extremely strong and likely true, despite the controversy", was one comment on the XMRV findings reported by Alter in Zagreb. "Although blood transmission to humans has not been proved, it is probable. The association with CFS is very strong, but causality not proved."

    Even if XMRV turns out not to be the sole cause, or even causal -- or perhaps a retrovirus that takes advantage of a dysfunctional immune system -- the fact that the #@** FDA and NIH may actually be confirming this is GREAT NEWS FOR ALL CFS/ME/CFIDS (etc., etc.,) research.

    I guess we'll know for certain when the paper is published.

    :Retro smile:
  12. Sing

    Sing Senior Member

    Messages:
    1,301
    Likes:
    421
    New England
    The last two staff writers at the New York Times who covered Chronic Fatigue Syndrome and XMRV whom I found are Denise Grady and David Tuller, but I don't know how to contact them. Their policy would probably not be to write anything before this news becomes more official, but someone here might give them a heads up.
  13. usedtobeperkytina

    usedtobeperkytina Senior Member

    Messages:
    1,384
    Likes:
    185
    Clay, Alabama
    Yes, Doogle, he is a firsthand source on a study coming from the agency he works at and in the department that likely contributed to it. (In other words, he is not a secretary in the pediatric muscle wasting department.)

    So what he said about their study confirming is not rumor. And his statement of study to be published can be true according to his knowledge at this time, although that can change, as Kurt said. A paper can be pulled any time before publication.

    Tina
  14. bullybeef

    bullybeef Senior Member

    Messages:
    476
    Likes:
    44
    North West, England, UK
  15. julius

    julius Watchoo lookin' at?

    Messages:
    785
    Likes:
    5
    Canada
    Damn, now I'm going to be checking in here every 30 seconds until the thing is published!!!

    Just hurry up and publish the freakin' paper!
  16. V99

    V99 *****

    Messages:
    1,471
    Likes:
    1
    UK
    next 24 hours will be interesting
  17. V99

    V99 *****

    Messages:
    1,471
    Likes:
    1
    UK
    Usually science papers are published on Thursdays and Fridays. Does Science report anything on a Wednesday. ( soon to be known as CFS is real Wednesday)
  18. VillageLife

    VillageLife Senior Member

    Messages:
    674
    Likes:
    36
    United Kingdom
    After all the years of being ill, I never thought this is how things might end up!
  19. bullybeef

    bullybeef Senior Member

    Messages:
    476
    Likes:
    44
    North West, England, UK
    Its bl**dy 1.30am here in the UK, typical the news had to hit now!!

See more popular forum discussions.

Share This Page