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Fatigue Clinic, University of NSW

Discussion in 'ME/CFS Doctors' started by rose1, Jun 26, 2016.

  1. rose1

    rose1 Guest

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    Sydney, NSW, Australia
    Has anyone had any experience through the Fatigue Clinic at NSW Uni.
     
  2. Richard7

    Richard7 Senior Member

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    Australia
    @rose1 I have no experience of them, but from other threads on this site I understand that they seem to be into GET and CBT.

    I have not bookmarked those threads but did bookmark this which may be useful.

    http://www.meaction.net/2016/04/29/tell-unsw-to-cancel-physician-training-in-get-and-cbt/

    There is a lot of info on the site re GET and CBT. The premise is that CFS/ME is a false illness belief :that you are ill because you think you are. And their idea is that doing cognitive behaviour therapy to confront and "re-educate" the patient about that false belief coupled with graded exercise therapy (gradually increasing levels of physical activity) will make you well.

    Re physical activity I would instead suggest that look into the workwell foundation http://www.workwellfoundation.org/research-and-latest-news/ . They are american, so out of reach, but you can watch their videos and they seem to know what they are talking about re physical exertion. I wish I had known about avoiding aerobic exercise and PEM when physios and others were advising me to keep walking and doing other things that were triggering PEM. Just hearing that there was another point of view would have been great.
     
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  3. Hutan

    Hutan Senior Member

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    New Zealand
    @rose1 - have a look at this thread. There's a video with Prof Andrew Lloyd and some of the staff talking about what I think is the same clinic you have asked about.

    http://forums.phoenixrising.me/inde...d-cbt-advised-for-me.37330/page-2#post-593191

    I wrote the following based on the video:

    So, I don't think there is much hope that the clinic will help much beyond what you could achieve by researching and applying pacing techniques. I myself would not go near it.
     
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  4. rose1

    rose1 Guest

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    Sydney, NSW, Australia
    Thanks for the links Richard, I'm feeling a bit more informed now.
     
  5. rose1

    rose1 Guest

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    Sydney, NSW, Australia
    Thanks Hutan, the video gave me a bit more info on the clinic.
     
    Hutan likes this.

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