May 12, 2017 Is International ME/CFS and FM Awareness Day
International ME/CFS and FM Awareness Day is May 12th, 2017. Jody Smith shares some information about upcoming events and ways you can be heard ...
Discuss the article on the Forums.

Fatigue and psychosocial variables in autoimmune rheumatic disease and CFS

Discussion in 'Latest ME/CFS Research' started by hixxy, Dec 22, 2016.

  1. hixxy

    hixxy Senior Member

    Messages:
    1,122
    Likes:
    1,294
    Australia
    J Psychosom Res. 2017 Jan;92:1-8. doi: 10.1016/j.jpsychores.2016.11.002. Epub 2016 Nov 14.

    Fatigue and psychosocial variables in autoimmune rheumatic disease and chronic fatigue syndrome: A cross-sectional comparison.

    Ali S, Matcham F, Irving K, Chalder T.

    Abstract

    OBJECTIVE:
    Fatigue is common in autoimmune rheumatic diseases (ARD). This study compared symptom-related cognitions, beliefs, behaviours, quality of sleep, lack of acceptance and distress in participants with ARD such as rheumatoid arthritis (RA), seronegative spondyloarthropathy (SpA), and connective tissue disease (CTD), and participants with chronic fatigue syndrome (CFS).

    METHODS:
    303 participants with RA, SpA, CTD and CFS completed questionnaire measures of fatigue, social adjustment, cognitive-behavioural responses, lack of acceptance, distress and quality of sleep. The RA, SpA and CTD groups were first compared with each other. They were then combined into one group and compared with the CFS group.

    RESULTS:
    There were no statistically significant differences between the RA, SpA or CTD groups for any of the measures. The CFS group was more fatigued, reported more distress and sleep disturbance and had worse social adjustment than the ARD group after adjustment for age and illness duration. After adjustment for fatigue, age, and illness duration, the CFS group scored more highly on lack of acceptance and avoidance/resting behaviour while the ARD group showed significantly higher levels of catastrophizing, damage beliefs, and symptom focusing than the CFS group.

    CONCLUSION:
    Fatigue in rheumatic diseases may be perpetuated by similar underlying transdiagnostic processes. The ARD and CFS groups showed similarities but also key differences in their responses to symptoms. Specific aspects of treatment may need to be tailored towards each group. For example, lack of acceptance and avoidance behaviour may be particularly important in perpetuating fatigue in CFS.

    Copyright © 2016. Published by Elsevier Inc.

    KEYWORDS:
    Acceptance; Cognitive behavioural responses; Fatigue; Rheumatology; Transdiagnostic

    PMID: 27998507
    DOI: 10.1016/j.jpsychores.2016.11.002

    https://www.ncbi.nlm.nih.gov/pubmed/27998507
    http://www.jpsychores.com/article/S0022-3999(16)30481-0/fulltext
     
    Woolie and Esther12 like this.
  2. MEMum

    MEMum Senior Member

    Messages:
    404
    Likes:
    2,085
    Ever thought it could be that ME totally hijacks normal life?
    Friends with RA and severe hypermobility have been able to study/work etc whereas ME has stolen these options from my daughter.
     
    Mary, Dr Speedy, Countrygirl and 17 others like this.
  3. Grigor

    Grigor Senior Member

    Messages:
    408
    Likes:
    913
    Amsterdam
    Ah my best friend Trudy. Love her. Just love her.
     
    Dr Speedy, Countrygirl, BurnA and 7 others like this.
  4. actup

    actup Senior Member

    Messages:
    162
    Likes:
    471
    Pacific NW
  5. Esther12

    Esther12 Senior Member

    Messages:
    8,449
    Likes:
    28,522
    Ugh.

    So we're now going to dump CFS 'treatment' based on the assumption symptoms were perpetuated by catastrophizing, damage beliefs, and symptom focusing?
     
    Mary, alex3619, trishrhymes and 5 others like this.
  6. Jonathan Edwards

    Jonathan Edwards "Gibberish"

    Messages:
    5,228
    Likes:
    31,916
    Yup. In a strange sense this is for me a welcome extra Christmas present. I am used to work from this author being terrible. This one is also horrible. As someone who has tried to help people with rheumatic disease through their problems from a position largely of admitting my ignorance, but moderated by a little bit of successful science, I find it extraordinary that any scientist should treat people with either ME or RA as if they were laboratory rats in this way. And with total incompetence.

    I now feel happy that I need have no reservations about my opinion of this body of work.

    This is horrible, creepy, dysfunctional.

    And by the way, fatigue in RA is due to TNF alpha. If you take away the TNF there is no fatigue. It disappears in the great majority of cases within a day or two. Removing the antibodies that stimulate the TNF takes longer but works as well.
     
    Mary, ballard, eafw and 45 others like this.
  7. A.B.

    A.B. Senior Member

    Messages:
    3,751
    Likes:
    23,189
    I take it that CBT, even augmented with a blue cardigan, doesn't reduce TNF alpha?
     
    Woolie, Countrygirl, MEMum and 18 others like this.
  8. BurnA

    BurnA Senior Member

    Messages:
    2,086
    Likes:
    9,861
    Wow. There is a 'worse' group than the CFS group and they have an actual disease.
    What does that mean ?

    Maybe the CFS patients' beliefs are normal afterall?
    Or if not, maybe the psychobabblers will move onto the ARD group cause clearly they need help more.
     
    Woolie, Dr Speedy, MEMum and 2 others like this.
  9. hixxy

    hixxy Senior Member

    Messages:
    1,122
    Likes:
    1,294
    Australia
    Blasphemy! Wishing Trudi and the psychobabblers on another disadvantaged group.
     
  10. GreyOwl

    GreyOwl Dx: strong belief system, avoidance, hypervigilant

    Messages:
    258
    Likes:
    905
    I think so too, about all of it. These people have got serious issues.
     
  11. daisybell

    daisybell Senior Member

    Messages:
    1,601
    Likes:
    7,362
    New Zealand
    Just the very idea of designing questionnaires to measure 'catastrophising', 'lack of acceptance' etc seems to be both incredibly lacking in empathy or any decent appreciation of how pain and fatigue can severely curtail the ability to live a decent enjoyable and productive life.

    What rock do you have to crawl out from under to think this sort of stuff is ok?

    The disdain is really horrifying.
     
    Mary, Woolie, Countrygirl and 9 others like this.
  12. Kati

    Kati Patient in training

    Messages:
    5,464
    Likes:
    19,585
    Is it just me or the authors are simply blaming patients for being sick? What service does that do to society? Oh, right... it serves the insurance companies.
     
  13. SilverbladeTE

    SilverbladeTE Senior Member

    Messages:
    2,909
    Likes:
    3,562
    Somewhere near Glasgow, Scotland
    Also serves rebirth of "Eugenics" attitudes, that is, really, the Elite want to get rid of those who don't benefit them by being their slaves.
    if you aren't a brainwashed productive slave, they want rid of you.

    They haven't yet got the idiots in society suitably brainwashed by evil swine like Rupert Murdoch's media to the point the Public are such cowardly hating assholes they will support gas chambers, neck shots etc
    But they will eventually...look at recent politics in USA and UK.
     
    NexusOwl, Inara, CJB and 3 others like this.
  14. Snow Leopard

    Snow Leopard Hibernating

    Messages:
    4,613
    Likes:
    12,437
    South Australia
    That feeling when you've been hypothesising something for 30 years and you still don't have any evidence for it.
    :vomit:
     
    Woolie, Dr Speedy, slysaint and 12 others like this.
  15. Sean

    Sean Senior Member

    Messages:
    3,257
    Likes:
    17,985
    The more different diseases they try this insanity on, the more the rest of medicine will come to see that it is insanity, and the more objections to it there are likely to be, including from people the babblers can't dismiss so easily as ratbag patients.

    So, as cruel as it sounds, it may be to our advantage for them to try extending their dodgy franchise.
     
    Last edited: Dec 22, 2016
    Woolie, Dr Speedy, slysaint and 10 others like this.
  16. alkt

    alkt Senior Member

    Messages:
    190
    Likes:
    347
    uk
    the rest of the medical fraternity allow this meaningless garbage to exist because they do not like admitting their ignorance of human biology to do so would take a huge shift in the human ego . since none of us would like to admit that we are useless in some areas of our professions.
     
  17. IreneF

    IreneF Senior Member

    Messages:
    1,552
    Likes:
    2,561
    San Francisco
    It seems that the "fatigue-perpetuating beliefs" among the ARD patients are completely normal. How are they supposed to feel?
     
  18. dyfalbarhau

    dyfalbarhau

    Messages:
    30
    Likes:
    172
    If the same standards for evidence were applied to the psychosocial research as are applied to biomedical research we would have no treatments and I am of the opinion we would be better off for it.
     
    Mary, ballard, Woolie and 6 others like this.
  19. ash0787

    ash0787 Senior Member

    Messages:
    299
    Likes:
    576
    Which university degree did these researchers do ? consider removing that degree from being taught

    I dont see how you can have lack of acceptance of CFS and at the same time have an official diagnosis that qualifies you to participate in a medical study seeing as there isn't an objective test and diagnosis involves going to the doctor over and over again and telling them 'I got CFS I got CFS ' until they accept defeat.

    I find it somewhat insulting that these people seem to suggest that our failure to interpret the world correctly is somehow meaningful in how our disease manifests itself, I have a very neutral, skeptical, objective and emotionally detached disposition and I was able for example to identify who would be the most popular candidate in the US election back in march, and I predicted the recent berlin terror attack to a timespan of a few days.
     
    trishrhymes likes this.
  20. Chrisb

    Chrisb Senior Member

    Messages:
    1,051
    Likes:
    5,358
    Did someone mention thinking. Not sure that features anywhere in the job description
    There is no evidence that any scientist does.
     
    GreyOwl, alkt, MEMum and 3 others like this.

See more popular forum discussions.

Share This Page