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Fatigue and MS

Discussion in 'Other Health News and Research' started by Cort, Dec 16, 2010.

  1. lancelot

    lancelot Senior Member

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    Yes there are effective drugs and treatments for diseases without a known cause but you must know the pathogenesis or disease process such as with MS and Parkinson's. Diseases like CFS/ME, Fibromyalgia, and autism that have no known cause nor pathogenesis are not only incurable, but you can't even effectively treat it(the root cause or pathogenesis with drugs or otherwise). We are unfortunately stuck with treating just the symptoms.
  2. Dolphin

    Dolphin Senior Member

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    Yes, but the way you said it might give the impression that all the millions on MS hasn't led to anything. When it has.
  3. lancelot

    lancelot Senior Member

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    What i meant was that if 400 million/year of research has not led to the cause of MS then a few million/year may not ever uncover the cause of CFS. All that money for research, however, has uncovered MS's pathogenesis so that effective treatments are available today and a cure in the future for sure. But without knowing the cause there can never be a prevention to a disease. Being able to prevent a disabling or life threatening disease may be even more important than being able to treat that disease.
  4. Cort

    Cort Phoenix Rising Founder

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    There you have it- another disorder with subsets....
  5. urbantravels

    urbantravels disjecta membra

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    HIV causes what looks like a lot of "different" diseases, but we know it as AIDS - acquired immune deficiency syndrome. There's no reason at all why a single pathogen can't cause more than one disease or disease process, and many of them do.

    With that said, I do think Dr. Mikovits is much too quick to proclaim that XMRV/MLVs are likely to be at the heart of so many different diseases. It may be true - but we just don't know yet.
  6. Sean

    Sean Senior Member

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    Agree with this view.
  7. Dx Revision Watch

    Dx Revision Watch Suzy Chapman dxrevisionwatch.com

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    Well Cort, if Chalder and Moss-Morris can't fix MS with CBT, Phil Parker and his Licensed Lighting Process practitioners are aleady moving in on MS patients.

    http://www.lightningprocess.com/Multiple-Sclerosis-Home/

    http://www.lightningprocess.com/Multiple-Sclerosis-How-does-it-work/


    This trial (PIs: Chalder and Moss-Morris) is actually being funded by the UK MS Society:


    Abstract PubMed: http://preview.ncbi.nlm.nih.gov/pubmed/19698171

    PDF full journal text:
    http://www.biomedcentral.com/content/pdf/1471-2377-9-45.pdf


    Open Access Text:

    BMC Neurol. 2009;9:45.
    http://www.biomedcentral.com/1471-2377/9/45


    Study protocol

    Protocol for the saMS trial (supportive adjustment for multiple sclerosis):
    a randomized controlled trial comparing cognitive behavioral therapy to
    supportive listening for adjustment to multiple sclerosis

    Rona Moss-Morris1 , Laura Dennison1 , Lucy Yardley1 , Sabine Landau2 ,
    Suzanne Roche3 , Paul McCrone4 and Trudie Chalder5

    1 School of Psychology, University of Southampton, Highfield Campus,
    Southampton, SO17 1BJ, UK

    2 Department of Biostatistics, Institute of Psychiatry, King's College
    London, De Crespigny Park, London, SE5 8AF, UK

    3 Chronic Fatigue Unit, Maudsley Hospital, Denmark Hill, London, SE5 9RS,
    UK

    4 Health Service and Population Research Department, Institute of
    Psychiatry, King's College London, De Crespigny Park, London, SE5 8AF, UK

    5 Department of Psychological Medicine, Institute of Psychiatry, King's
    College London, Weston Education Centre, Cutcombe Road, London, SE5 9RJ, UK

    author email corresponding author email [or contact forms refer to
    website]

    BMC Neurology 2009, 9:45doi:10.1186/1471-2377-9-45

    The electronic version of this article is the complete one and can be found
    online at: http://www.biomedcentral.com/1471-2377/9/45

    Received:15 July 2009
    Accepted:23 August 2009
    Published:23 August 2009

    2009 Moss-Morris et al; licensee BioMed Central Ltd.

    This is an Open Access article distributed under the terms of the Creative
    Commons Attribution License (http://creativecommons.org/licenses/by/2.0),
    which permits unrestricted use, distribution, and reproduction in any
    medium, provided the original work is properly cited.
  8. pine108kell

    pine108kell Senior Member

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    With the boldness of her proclamations, there is a decent chance that she has done great harm to her own reputation, WPI and maybe CFS.
  9. urbantravels

    urbantravels disjecta membra

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    Frankly, the minute she adds autism to the mix, that causes a MAJOR credibility problem. As politicized as autism is, I'd be very, very, VERY sure of my facts before making any claims about causation.
  10. Snow Leopard

    Snow Leopard Senior Member

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    Exactly. Sometimes it is better to keep ones mouth shut - until one has more concrete proof of ones claim.

    Note the quite different language used than a CFS trial. Quite sad really how they make out it is curative in CFS, when the 'benefits' are more or less the same as an MS patient.
  11. Cort

    Cort Phoenix Rising Founder

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    It is scary territory. I noticed that it is not on the leaflet for the next lecture.

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