Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
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fasciculations (muscle spasms) but they're also in my brain..

Discussion in 'Neurological/Neuro-sensory' started by soofke, Oct 25, 2017.

  1. soofke

    soofke

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    Dutchy
    aloha,

    I have ME since the dark ages and after a combo of antibiotics for mycoplasma and weird drops for ebv/hhv6/toxoplasmosis/lyme/coxsackie B (with which it al started) I've been having these odd spasms which are according to a ME specialist and a neurologist fasciculations but those are not supposed to a) be in your brain b) movable, I can sort of direct them from one place to another, dontaskmehow c) curing; when they're in 1 spot for a long time then something snaps and I can for example all of a sudden read a book, which I couldn't for years d) be brutally painful, especially in my head, but not complaining since they seem to help me and painkillers work for days

    been to an eye doctor last month and he never saw it this bad in someone my age, or in both eyes (my visions has been blurred since taking Carnitine by the way) and wants me to see another specialist but he's booked full til next year, I doubt that this is still going on by then, which means physical evidence will be lost, not entirely uninmportant in a disease that nobody can see

    is there like a hotline for visible and possibly even curing symptoms? :)
     
  2. pattismith

    pattismith Senior Member

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    If you are looking to other patients with fasciculations/muscles spasms/twitching muscles/twitches, you will find a lot here if you do a search. :thumbsup:
     
  3. soofke

    soofke

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    Dutchy
    neh, I've spoken to enough twitching ppl to know my diagnosis is incorrect but thanks! (unless theirs make a popping sound too and release neurotransmitters)
     
    Last edited: Oct 26, 2017

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