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Farewell – A Last Post from Anne Örtegren who has just lost her struggle with ME

Discussion in 'General ME/CFS News' started by Countrygirl, Jan 7, 2018.

  1. Countrygirl

    Countrygirl Senior Member

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    Warning: Do not read this if you are feeling particularly low.

    Anne has just left us, I think in the last few hours. As I understand it, she decided to end her life at the Swiss clinic. She was a great advocate who suffered severely from ME and, like me, the intolerable buring skin problem whereby you cannot tolerate fabic, even silk touching your skin.

    She has wriiten this farewell to the ME community. It is very long but is an excellent article which could be shown to family and friends and others, who do not understand


    [​IMG]

    lobel.nu/anne.html


    copy and paste the link for the complete article


    [​IMG]
     
  2. Countrygirl

    Countrygirl Senior Member

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  3. maybe some day

    maybe some day Senior Member

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    Sorry to read about her suffering. Sounds like it was quite severe with no escape from symptoms. Thank you for sharing.
     
  4. Mary

    Mary Senior Member

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    Thanks for posting @Countrygirl - I can't "like" your post but appreciate it. I cannot imagine that level of suffering with no way to ease it --
     
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  5. Nickster

    Nickster Senior Member

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    This is so very sad. The suffering and torture from this disease is indescribable. I respect her wishes to end the suffering.

    I commend her for bringing this public and hope the medical community is listening. I know that I have heard you Anne.
     
    Cornishbird, justy, boombachi and 9 others like this.
  6. Laurie P

    Laurie P

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    I hear you too, Anne. I’m so sorry that you suffered so much and that you couldn’t stay any longer. I understand. To her loved ones, I send my heartfelt sympathy and deepest compassion.
     
    boombachi, Shoshana, Nickster and 3 others like this.
  7. Mel9

    Mel9 Senior Member

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    So very very sad
     
  8. lauluce

    lauluce as long as you manage to stay alive, there's hope

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    argentina
    so sad... but the people who should be financing the search for treatment will just say "see? she was mentally ill after all, she took her own life!"
     
    Last edited: Jan 8, 2018
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  9. mariovitali

    mariovitali Senior Member

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    My God...May she rest in Peace...
     
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  10. Dechi

    Dechi Senior Member

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    What a horrific life of suffering. :-( May she rest in peace.
     
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  11. bombsh3ll

    bombsh3ll Senior Member

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    A dignified and courageous lady. God bless you Anne, may you be at peace now.
     
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  12. bertiedog

    bertiedog Senior Member

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    A terrible waste of a life and something the health authorities in Sweden should be ashamed of.

    Pam
     
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  13. boombachi

    boombachi Senior Member

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    So sad to read but also so important. Thank you for posting.
     
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  14. Ravn

    Ravn Senior Member

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    A very courageous woman fighting to the last for the rest of us. You've been an inspiration. Thank you Anne and RIP.
     
  15. lauluce

    lauluce as long as you manage to stay alive, there's hope

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    argentina
    rest in peace now, sister. your fight will always be remembered, and we'll carry on with it, for all our brothers and sisters with ME
     
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  16. lauluce

    lauluce as long as you manage to stay alive, there's hope

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    they'll never be ashamed, no one will ever be ashamed of what they're doing to us but we'll always be together in this fight
     
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  17. Countrygirl

    Countrygirl Senior Member

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    http://www.investinme.org/AnneÖrtegren.shtml
    [​IMG]


    Farewell to a Friend


    Today we had the very sad news that Anne Örtegren from Sweden had passed away.

    We considered Anne a dear friend.

    This news has come as a great shock.

    Our condolences to Anne's family.



    Anne Örtegren

    [​IMG]We never met Anne Örtegren in person. Yet we counted her as a true friend.

    When we look at the correspondence with Anne we can see it had started in 2007 - a year after we were formed as a charity.

    In all the correspondence that we had with Anne one always admired the resilience, the articulate nature of her commenting, her strength of character, her dedication and her determination to continue to battle this disease, to help others and to be there to make progress.

    We instinctively trusted and liked Anne from the first time we communicated. She was a rock – somebody whose opinion we valued and whose help and support we greatly appreciated. And she was generous with her support.

    Anne’s determination to help us and to encourage Swedish researchers to participate was a shining light for us.

    Her help behind the scenes – she was never one to promote herself or seek the limelight for the sake of it – led to real collaborations between researchers who met at our Colloquiums.

    She was an example to us all.

    An unimaginable void has now appeared in ME advocacy – someone who is irreplaceable.

    Though we knew Anne was suffering, and had been for such a long time, we were still communicating with her until very recently and had no knowledge of what was to transpire.

    Her spirit was just an inspiration.

    It is very difficult to read Anne’s last post (below).

    Not just because of the suffering and pain and hopelessness that she describes – but because Anne was so articulate in describing her situation – never with self-pity, always displaying the same courage that she showed in her life.

    We lost a friend today and it is hard to pick oneself up at this time.

    A light has gone out and the world is all the darker for it.

    When we lose a friend we lose a part of ourselves

    Yet there are those who leave footprints in one's memory whom one will always remember.

    Anne Örtegren is such a person.

    [​IMG]

    Farewell – A Last Post from Anne Örtegren



    Anne's facebook page is here https://www.facebook.com/anne.ortegren
     
  18. kms1990

    kms1990

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    This makes me so angry. Not that she chose to end her suffering, but that no doctor helped her enough so she could at least have a few hours a day of joy. It sure does sound like she has symptoms of an autoimmune disease to me. My doctors after 10 years started treating me like I have one with serious immune therapy and guess what. I am no longer suffering 100% of the day and enjoying some aspects of my life again.

    This is such ashame.

    Why create all the drugs we have in modern society if we are not willing to at least try them on someone as ill as she was before signing off for the final time.
     
  19. lauluce

    lauluce as long as you manage to stay alive, there's hope

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    That's what I always think, that the drugs we need to improve our condition do not even need to be discovered, they are already in the stores, the problem is that no one wants to work hard enough to figure how to use it on ME sufferers!!!
     
    Countrygirl likes this.
  20. Gingergrrl

    Gingergrrl Senior Member

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    This is tragic and I am so sorry that you suffered so much, Anne. May flights of angels sing thee to thy rest and may your memory be a blessing to all who knew you.
     
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