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family intervention for chronic fatigue syndrome

Discussion in 'General ME/CFS News' started by MeSci, Jan 23, 2014.

  1. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    Don't ask me what the £$*+ this is, but @Tom Kindlon posted it in another forum! (Saving you the trouble, Tom. :)) It's a job ad from Manchester Mental Health and Social Care Trust to assist Professors Alison Wearden and Christine Barrowclough. It sounds like psychoquackery.

    http://www.jobs.ac.uk/job/AIA177/research-assistant/

     
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  2. SOC

    SOC Senior Member

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    Things are getting scarier by the minute in your part of the world! :eek:

    Or perhaps I'm wrong in thinking they are going to try to use psychological manipulation on your families as well now...?
     
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  3. Katherine

    Katherine

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    Completely bizarre. What a waste of money.
     
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  4. Desdinova

    Desdinova Senior Member

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    :eek:Just when you think they can't get any sicker. now they bring the family in and will use them as a tool against those that are sick. But Honey don't you want to get better.
     
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  5. SilverbladeTE

    SilverbladeTE Senior Member

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    Somewhere near Glasgow, Scotland
    blame the victim, divide and conquer...

    note it's not seemingly a trial on beneficial help of support for those with this illness, it is INTERVENTION
    big bloody difference

    we are well on the route to concentration camps, people simply cannot see the mentality and scope, how the dominoes fall, how the "road to hell is paved with good intentions"
    is it just because I've actually had to deal with manipulative sociopaths and actual psychopaths, and love history and it's lessons, or are so many folk out (society) there really that damn dumb they can't see this coming?
    swear its like folk having their head in the sand :(
    Dis the NSA stuff, Agent Orange, etc not wake folk up enough? bleeeeeeeeeeeerg!
     
  6. biophile

    biophile Places I'd rather be.

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    At first I thought the title of this thread was about someone's family doing an "intervention" on them (the kind where your family get together to have an aggressive chat with you about some major problem in your life). It sounds like this job ad is mostly about getting someone good at writing grant proposals to help bring home the bacon for their team and keep the coffers full.
     
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  7. alex3619

    alex3619 Senior Member

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    Outcome measures. One of the big things wrong with psychobabble is the use of potentially biased and subjective outcome measures. I would suggest they use the 2 day CPET but I doubt they will, as the first thing it will probably do is demonstrate most of their patients do not have ME or strict CFS, but are misdiagnosed.

    Post viral fatigue, which is what many of these patients will probably have, is about immune response, immune cells, cytokines etc. The only family intervention worth a damn is supporting the patient till they recover normally. Somehow I doubt that is what they intend.

    For ME, all this might do is alienate patients, and might turn a patient with no psychiatric issues into one with serious psychiatric issues. Way to go!

    For misdiagnosed depression I wonder if this kind of thing has already been studied.

    Outcome measures and cohorts matter.
     
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  8. Snowdrop

    Snowdrop Rebel without a biscuit

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    What do we need: Educating everyone as to what ME is.

    When do we need it: NOW is almost not soon enough.
     
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  9. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    They forgot to add organise infection testing, tcell lymphocyte testing, nk function testing and possible 2 day exercise function test. Also no mention of access to antivirals or antibiotics as well as immune treatments like immunoglobulins and ampligen. Maybe they will advertise the position for an immunologist/infectious disease specialist later:bang-head::bang-head::bang-head::bang-head:
     
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  10. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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  11. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    I'm worried that it might include Munchausen's-by-Proxy type diagnoses and taking children away from their parents. Definitely needs watching.

    Imagine talking about family intervention for...cancer, cystic fibrosis, measles...
     
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  12. alex3619

    alex3619 Senior Member

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    1955. That is when we needed it. That is when the findings and technology existed to do stuff. 59 years of ignorance is what we got instead.
     
  13. A.B.

    A.B. Senior Member

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    With the psychological studies it's almost as if they didn't want to look too hard, for fear of finding something that doesn't agree with their theories.
     
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  14. user9876

    user9876 Senior Member

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    There have been cases where doctors have accused parents of Munchausen's-by-Proxy or FII as its now called where the child has cancer but there is a failure to diagnose by the doctors. Instead they waste time looking at FII.
     
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  15. SilverbladeTE

    SilverbladeTE Senior Member

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    stealing kids is Big Business in Britain now, they privatized the children's home care system
    so, the companies then bought up the expert witnesses and lawyers involved, so it's almost impossible to win without concrete evidence
    and then they can pimp the kids out to elite perverts because it's all kept secret, secret courts...

    let's just say my thoughts on our "system" preferentiate towards a nickel iron meteorite....
     
  16. biophile

    biophile Places I'd rather be.

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    Talking about family interventions, it would be nice for the wider medical family to step in and explain to their psychiatry cousin that enough is enough, time to embrace science more sincerely.

    I have been wondering how many of the clues to the pathophysiology and etiology, that have been hinted at over the recent years, could have been discovered or explored many years or even decades earlier with the right funding direction. Obviously the technology has improved greatly in the past few decades, so perhaps that has been missing too.

    Yeah, just look at psychological researchers in the UK, who have been pushing the cognitive behavioural model which supposedly treats CFS successfully with CBT/GET, leading to improvements or 'recovery' of health and function. Except despite all the rosy claims about increasing activity and resuming normal lives, these researchers seem to have an aversion or even an aggressive dislike of objective outcome measures. Is it a mere coincidence that the limited available objective evidence just happens to debunk their claims (rhetorical question of course!)?
     
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  17. Valentijn

    Valentijn Senior Member

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    Some groups have been advocating cutting off family support for decades. They've never been able to get enough people to listen to them for that approach to get widely disseminated.

    Their rather nasty argument is that we stay sick because our (well-meaning) loved ones take care of us too much. The solution is to withhold physical support, such as getting us food or helping us get to the bathroom. These sorts of abuses have certainly occurred before, but I've only heard of it being done deliberately in hospital settings.
     
  18. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    Studies have found that on average people whose illness is more severe get more support.

    Psychoquacks have adopted the bizarre, perverse viewpoint that it is the support making/keeping the sufferers ill, rather than the logical and obvious conclusion that if you are more ill you need - and hopefully get - more support!

    I know of a severely-affected person in another forum, with whom I have been in communication, who was persuaded by a psychoquack to move into a flat away from the support of her husband on the grounds that his support was making her too dependent. Pretty-well everyone else was horrified, but she is so desperate that she is prepared to try anything.

    Did it work? Or did she get worse? Your best guess will be right.

    All the extra hassle involved in ending the lease on the flat and moving back home didn't help either...
     
  19. A.B.

    A.B. Senior Member

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    They always go with the misanthropic patronizing interpretation, in good Freudian tradition.
     
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  20. globalpilot

    globalpilot Senior Member

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    Wow, is that ever sad and unfortunate. I'm glad she moved back home and I'm sure she has a new opinion of the psych doctor.

    I know I deteriorate when my loved one is away, not improve and he notices it as well.
     
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