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Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Falling down...symptom or clumsiness?

Discussion in 'General Symptoms' started by Bookworm84, Jan 10, 2017.

  1. Bookworm84

    Bookworm84

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    Wales
    I'm wondering if anyone else gets this as a symptom of CFS?
    In the last year I've fallen down the stairs twice whilst ill with other symptoms. The first time was when I had arm pain due to Thoracic Outlet Syndrome. I don't know what happened but suddenly I was slipping down the stairs but was stopped at the bottom by the closed dog gate.

    The second time was this morning. I had strep throat before Christmas, finished the antibiotics on Christmas Eve and felt fine. Now I've caught a virus that's going around and feel dreadful again. I slipped again with no knowledge of how I fell.

    I've always been clumsy and have lots of falling down stories. I'm not sure if this is something that's normal and it's a coincidence that both falls have been whilst my body is under stress. Or is this a symptom of CFS that flares up the same as any other?

    Thinking back I have lots of memories where my legs just suddenly stop working, where they forget how stairs work, trouble getting onto escalators and wobbly legs etc. I always assumed that happened to everyone at times (I had glandular fever aged 7 which is where my symptoms started).

    I'd be really interested to hear if anyone else has had similar experiences.
     
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  2. Valentijn

    Valentijn WE ARE KINA

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    My guess would be hypotension or similar form of orthostatic intolerance (OI). Viruses can cause hypotension, which might be especially bad if you already have some OI as a common ME symptom.

    But it's probably best to get it checked out with a doctor. If you have OI on a chronic basis, it can probably be diagnosed and possibly treated.
     
  3. lansbergen

    lansbergen Senior Member

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    I had that a lot
     
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  4. Bookworm84

    Bookworm84

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    @Valentijn Thank you so much, that's really helpful. I'll have a read up on it and check in with the Dr. One of the hardest things is trying to seperate symptoms from more general issues or personal quirks.
     
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  5. lnester7

    lnester7 Seven

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    Symptom, I get it when I am inflamed in the head.
     
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  6. Daffodil

    Daffodil Senior Member

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    I agree with the others but I would maybe get an MRI to be sure it isn't something else.
     
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  7. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

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    I stumble and fall occasionally. I fumble and drop a lot and it has become worse. This did not happen before the ME/CFS, so I think it is a symptom.
     
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  8. Daffodil

    Daffodil Senior Member

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    oh absolutely. I do it all the time.
     
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