International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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Failings of the Establishment Organisations Toward People with ME by IiME

Discussion in 'Action Alerts and Advocacy' started by Countrygirl, Jun 15, 2017.

  1. Countrygirl

    Countrygirl Senior Member

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    http://www.investinme.org/IIME-Newslet-1706-02.shtml

    Click on the link for the full document.

     
    johnnydme, TiredSam, Aroa and 6 others like this.
  2. sarah darwins

    sarah darwins I told you I was ill

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    The bit that comes after countrygirl's extract, featuring that "apathetic, negligent and incompehensibly arrogant response from Sir Bruce Keogh", is a stunning example of establishment hauteur, a real "let them eat cake" dismissal. Shocking.
     
  3. Snowdrop

    Snowdrop Rebel without a biscuit

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    Since this seems to indicated a new order and a regime change it would be good to do this over again while the new people are fresh. If they will be there for any length of time it would be good to subtly point out that as they go through their tenure they will look foolish indeed if they do not address the glaring neglect of people with ME as the rest of the world moves forward. All previous establishment people in these positions surely felt that business as usual would suffice and nothing would challenge the world order. This is no longer the case. Helping them to see that might be useful.
     
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  4. SamanthaJ

    SamanthaJ Senior Member

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    I heard a radio programme a while back about Simon Stevens. Clare Gerada (Mrs Wessely) was described as a friend and former neighbour :(
     
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  5. Jo Best

    Jo Best Senior Member

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    johnnydme, Starlight and slysaint like this.
  6. Jo Best

    Jo Best Senior Member

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