The Call for Opposition: Challenging the P2P and IOM Processes
In our second article on how to react to the publication of the draft P2P report, Gabby Klein provides her view of why she and a large group of advocates and patients are continuing their protest of the government’s ongoing control and manipulation of our disease via their processes...
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Facts of the HHS/IOM contract

Discussion in 'Institute of Medicine (IOM) Government Contract' started by Nielk, Nov 17, 2013.

  1. Nielk

    Nielk

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    HHS/IOM Contract Facts:


    HHS has signed a contract with the IOM to re-define ME/CFS.

    HHS is spending approximately one million dollars to do so.

    HHS refuses to adopt the CCC in defiance of 50 experts, 171 advocates and countless patients.

    The contract is not what the CFSAC recommendation called for.

    HHS lied when they said they are canceling the action to contract with the IOM.....just to change their mind a week later.

    IOM will have non-experts on the panel.

    IOM has re-named GWI to CMI and considers CFS a psychogenic disease needing treatments of anti-depressants, CBT and GET.

    Government contracts can be broken and canceled.

    There was no full and open competition in attaining the HHS/IOM contract.
     
    Last edited: Nov 19, 2013
    alex3619, justinreilly and dancer like this.
  2. Nielk

    Nielk

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    Please post here other true facts so far about the contract that can be added to the bullet point list above. In this way, we can have an easy quick read/reference of facts.
     
  3. Andrew

    Andrew Senior Member

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    The HHS contract doesn't include validity testing. There is no requirement to test a new criteria and see if it can actually differentiate ME/CFS patients from other illnesses. Therefore, any new criteria will NOT be an evidence-based criteria. It will only be an evidence-based hypothesis. The HHS has repeatedly said that any change we suggest to them must be evidence-based. Yet, here they are developing their own criteria, and it will have less testing than the CCC.
     
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  4. justinreilly

    justinreilly Stop the P2P! Adopt "ME" & CCC!

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    Nice.

    Let me nitpick on one confusing point. You say that IoM considers CFS to be a somatic illness. Somatic means 'bodily' or physical (not psychological). IoM actually considers CFS to be a psychosomatic (i.e. mind-body) illness. (at the risk of getting more confusing, I prefer the term 'psychogenic' (i.e. caused by the mind) illness, since it is more accurate than psychosomatic (since all illnesses have some mind component and some physical component))
     
  5. Nielk

    Nielk

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    Thanks, Justin.
     

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