How we can hijack the media, in four easy lessons
Love it, hate it, good story, bad story... the media are going to keep reporting on ME/CFS no matter what. But isn’t it time that we saw that coverage as an opportunity?
Discuss the article on the Forums.

Facts of the HHS/IOM contract

Discussion in 'Institute of Medicine (IOM) Government Contract' started by Nielk, Nov 17, 2013.

  1. Nielk

    Nielk

    Messages:
    6,469
    Likes:
    9,113
    HHS/IOM Contract Facts:


    HHS has signed a contract with the IOM to re-define ME/CFS.

    HHS is spending approximately one million dollars to do so.

    HHS refuses to adopt the CCC in defiance of 50 experts, 171 advocates and countless patients.

    The contract is not what the CFSAC recommendation called for.

    HHS lied when they said they are canceling the action to contract with the IOM.....just to change their mind a week later.

    IOM will have non-experts on the panel.

    IOM has re-named GWI to CMI and considers CFS a psychogenic disease needing treatments of anti-depressants, CBT and GET.

    Government contracts can be broken and canceled.

    There was no full and open competition in attaining the HHS/IOM contract.
     
    Last edited: Nov 19, 2013
    alex3619, justinreilly and dancer like this.
  2. Nielk

    Nielk

    Messages:
    6,469
    Likes:
    9,113
    Please post here other true facts so far about the contract that can be added to the bullet point list above. In this way, we can have an easy quick read/reference of facts.
     
  3. Andrew

    Andrew Senior Member

    Messages:
    2,123
    Likes:
    1,858
    Los Angeles, USA
    The HHS contract doesn't include validity testing. There is no requirement to test a new criteria and see if it can actually differentiate ME/CFS patients from other illnesses. Therefore, any new criteria will NOT be an evidence-based criteria. It will only be an evidence-based hypothesis. The HHS has repeatedly said that any change we suggest to them must be evidence-based. Yet, here they are developing their own criteria, and it will have less testing than the CCC.
     
    Purple and justinreilly like this.
  4. justinreilly

    justinreilly Senior Member

    Messages:
    2,495
    Likes:
    1,201
    NYC (& RI)
    Nice.

    Let me nitpick on one confusing point. You say that IoM considers CFS to be a somatic illness. Somatic means 'bodily' or physical (not psychological). IoM actually considers CFS to be a psychosomatic (i.e. mind-body) illness. (at the risk of getting more confusing, I prefer the term 'psychogenic' (i.e. caused by the mind) illness, since it is more accurate than psychosomatic (since all illnesses have some mind component and some physical component))
     
  5. Nielk

    Nielk

    Messages:
    6,469
    Likes:
    9,113
    Thanks, Justin.
     

See more popular forum discussions.

Share This Page