Discussion in 'Latest ME/CFS Research' started by Kyla, May 9, 2016.
These are all psychiatrists and psychologists with a specialisation in MUPS and/or sleep specialists/psychologists. I'm pretty sure they're all from a department called 'pathological fatigue' at the University hospital in Ghent. They have a VERY bad name in the patient community. Pretty much every patient story I've heard ends with a referral to a psychologist/psychiatrist, after an exhausting series of useless tests, where patients are treated in a very demeaning way. Textbook BPS.
Similar study from the same people (2003) - http://www.smrv-journal.com/article/S1087-0792(12)00073-1/abstract
I figured as much based on some of the language but haven't read the full article as it is behind a paywall.
Figured it was worth posting to keep track of this sort of thing.
If anyone has access to read it I can add some detail / description to the original post
I'm not willing to pay to read psychobabble
Blimey. I've never been told I can't even be trusted to know whether I've slept well or not. Then again, why not, it's not like anyone believes anything I tell them anyway.
But no mention of neuroticism in the Conclusions?
Just maybe because measured neuroticism wasn't related to anything else? As in maybe, despite perhaps what the authors wish and Fukuda criteria, neuroticism has nothing to do with being ill with CFS?
If anyone does read the full paper, I'd be interested to know what they found out about this. My son and I regularly fill out questionnaires for a Royal Children's Hospital, Melbourne study that seems determined to find a relationship between neuroticism and CFS in children and adolescents. As in 'Do you repeat words or numbers in order to stop bad things happening?' 'Are you scared of the dark?' There is a sleep quality component in this study too - some children were selected to wear sleep quality monitors.
http://sci-hub.cc/10.1080/17843286.2016.1165396 for the masochistic
That looks like an OCD question.
On my little search to find out who these people are, I came across some pretty disturbing quotes from them. 'Doctors shouldn't be too eager to give patients a CFS diagnosis. Patient might have an actual problem that needs treatment!' Doesn't that say it all?
I have to say though, the Ghent sleep clinic (purely as a sleep clinic) has a good reputation. I figure at some point they started to get loads of CFS patients and didn't know what to do with them. In came the psych brigade. (my speculation, but probably pretty close to what happened)
full text at: http://sci-hub.bz/10.1080/17843286.2016.1165396
Sci-hub.io is shut down, but sci-hub is still available at sci-hub.bz or sci-hub.cc.
Rats... i just saw that someone else already posted that.
Better to have two willing to help than none .
Thanks for further info @TiredSam (happy birthday!) and @Effi .
I spotted at least 2 Chalders and a Wesseley in the references, for those who can't read the whole thing.
Are you implying that CBT/GET might be recognised as not being a treatment?
This is a very interesting quote. Is it part of a considered written piece, or was it just an off the cuff remark that someone noted, and passed on, and to which too much importance should not be attached?
@Chrisb I read it in an article that talks about the study from 2003 that I posted above. Not sure where the article comes from, or when it was written, but I'm guessing not long after publication of said study, in a professional magazine of some sort. What they keep implying is that CFS is not a physical illness. But they don't say it's psychiatric either. Almost as if it doesn't really exist? Back then they were very convinced of CBT/GET as the only way to go. Not sure how it is now, but this most recent paper they've published looks like they haven't learned anything new in the past 13 years.
Another thing I read, written by one of the psychiatrists in this study was this (paraphrased): This idea of CFS becomes a part of patients identity in such a way that it is psychologically and socially perpetuated. When this happens, their situation becomes virtually irreversible. High quality drivel.
Rather convenient for the inept physician-about-town as well.
You can also try a Google Site Search
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