1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Part 2: Brain Cells Making us Sick? Messed up microglia could be driving symptoms
Simon McGrath looks at theories that microglia, the brain's immune cells, might be overactive and driving the symptoms of ME/CFS and fibromyalgia.
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Facing Christmas With the ME/CFS Community at Phoenix Rising

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Dec 21, 2012.

  1. Mercy

    Mercy

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    Thank you, Jody.
    I have not seen my family in six years because I am too sick to leave my house and they all live in a far off state. Life goes on for them, filled with births (I have a 6-year-old niece I have never even met) weddings, birthday parties (my Mom is 91 and I am unlikely ever to see her again). And then there is Christmas. My family is all together celebrating as usual, while I try my best to ignore the whole thing. I say try, because it never works. Life goes on as a family for them, but I feel like the poor orphan in a Dickens novel, with my face perpetually pushed up against the glass wondering why my life seems to be pretty much finished.
  2. MishMash

    MishMash *****

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    That stinks. I'm really sorry to hear your plight. All those at the same time would drive my stress level through the roof. One would be enough.

    I'm praying for you. I haven't decided which supernatural diety yet, as I am not entirely religious. But I will think about folks in your situation. Best of luck.
    merylg, jimells and Crux like this.
  3. PNR2008

    PNR2008 Senior Member

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    Jimells, I emphathizes with you. What has happened to you in three years is common especially to us. I wrote about decorating demons because it hurts but is still frivilous. In the past 4yrs, I've moved to a one floor after 30years in an old house that was paid off. I used the equilty as down payment on the new place but the housing market declined and I couldn't sell the old home. It took 3yrs to go in foreclosure, my credit rating tanked, my therapy dog died prematurely, I broke my ankle, my insurance dropped me, my retina is detaching, family members helped monitarily then stopped because I wasn't informing them enough and I have to jump my car everytime I use it. When I fill out my disablity or hospital papers or pay bills my head and hand shake so bad I thought I had Parkinson's, just essential tremor I'm told. I'm wriing this not to compare miseries but to pat us both on the backs for even surviving. We are heroes. Try and have a Merry Christmas. God Bless You.
    MishMash likes this.
  4. AFCFS

    AFCFS Senior Member

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    NC
    ahimsa, MishMash, Dreambirdie and 2 others like this.
  5. GracieJ

    GracieJ Senior Member

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    Utah
    He needs more bling. :p
    AFCFS and MishMash like this.
  6. Jarod

    Jarod Senior Member

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    planet earth
    Hey Jim.

    Don't know what quite to say other than I wish I could help.

    There are still good people out there. Hang in there. Things will get better for you.

    Jarod
    AFCFS likes this.
  7. MishMash

    MishMash *****

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    Georgia
    AFCFS likes this.
  8. MishMash

    MishMash *****

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    I am so sorry to hear about your troubles. You don't deserve all that. You are a survivor. Words don't help much. But I'm keeping you in my prayers. (unfortunately, I'm still picking the supernatural diety). All the best, and here's hoping it starts getting better (the housing market is starting to pick up some parts of the country)
  9. Dreambirdie

    Dreambirdie work in progress

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    So MIshMash--If you are seriously looking for a supernatural deity, you might consider the magic mushroom, amanita muscaria. Apparently there is considerable evidence that this mushroom was used in ancient ceremonies by shamans in the Far East. In Siberia, both the shamans and the reindeer were known to eat these mushrooms. Man and beast alike hallucinated.

    The resemblance of the mushroom to Santa's outfit is a bit uncanny... don't you think?

    Amanita_muscaria(tfl-c0229-35).jpg



    http://news.yahoo.com/magic-mushrooms-may-explain-santa-flying-reindeer-210334389.html

    Little Bluestem and MishMash like this.
  10. jimells

    jimells Senior Member

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    northern Maine
    Cool. Now we know what makes Santa and the reindeer fly :D
    ahimsa, MishMash and Dreambirdie like this.
  11. jimells

    jimells Senior Member

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    northern Maine
    :( Why does it never occur to them to go visit you?

    It's almost like our families, and society as a whole, have made a conscious decision to punish us for being sick. A few months ago my mom called to tell me my aunt, a couple of cousins, and one of my sisters were all at her house in southern Maine. They were going to Portland to have a nice seafood dinner at a waterfront restaurant, while I was stuck at home, probably eating lentils and rice. My aunt and her husband had travelled from Virginia, about 800 miles. Could they have travelled another 200 miles to visit me? Nope. Too far.
    MishMash likes this.
  12. jimells

    jimells Senior Member

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    northern Maine
    Thanks. Pick whichever one gives you the most comfort - that's what they're for, isn't it?

    And I appreciate the concern and good wishes of you all. :hug:
    MishMash and Dreambirdie like this.
  13. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    [​IMG]

    From Facebook:

    California Lyme Disease Association
    Like This Page · 22 hours ago



    "Real housewife" Yolanda Foster, doing IV treatment for Lyme, tweeted this pic & message: Sending love to all Lyme patients out there! I know this is tough, but "Together we stand strong"
    Clodomir, AFCFS, ahimsa and 1 other person like this.
  14. Forebearance

    Forebearance Senior Member

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    I'm so sorry, Jim, that you are in such a difficult place.
    I'm so sorry, Mercy about your family's callousness.

    It does seem like sometimes my family acts like my illness is a choice I am making, and so they don't feel bad about leaving me out of family events. It's as if they have written me off as anti-social or something. If only there were more compassion in the world!

    Forebearance
    Little Bluestem, Sing and ahimsa like this.
  15. ahimsa

    ahimsa Senior Member

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    My favorite holidays are:
    • Winter Solstice (Dec. 21)
      The days start getting longer (at least for those of us in the northern hemisphere), so, hooray for that! I can see why the pagans celebrated this holiday. Of course, while I like sunlight, I don't like the heat that sometimes comes with it. That's why the Pacific NW is a good choice for me. :cool:
    • Pi Day (March 14 which is 3/14 in month/day format)
      Who doesn't love pie?

    [​IMG]
    • Pi Approximation Day (July 22 which is 22/7 in day/month format)
      Yeah, I'm a big ol' nerd. :D
  16. Jarod

    Jarod Senior Member

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    planet earth
    Somebody hijacked my username "Jarod" and starting posting in the comments on those articles in your link DreamBirdie. Very interesting, as I only use "Jarod" username on the ME/CFS forums.

    What a bizarre coincidence it pops up right at the top of that link you posted.
  17. Jarod

    Jarod Senior Member

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    planet earth
  18. When I was 4 yrs old ( 1954) I had to rest on the couch while my sisters ran around playing, decorating the tree. And yes, I felt left out, lonely. My mother and older sister worked hard to make me feel included. They still do. My adult daughters do, my soninlaw , his mother does. They are all amazing, incredibly kind. But yeah, sometimes you want to do for others. That is the greatest joy. I miss that. Great article Jody. Ty, Merry Christmas. <3
    ahimsa and BEG like this.
  19. Dreambirdie

    Dreambirdie work in progress

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    The pagan holiday associated with Christmas was YULE.

    "Yule or Yuletide ("Yule time") is a religious festival observed by the Northern European peoples, later being absorbed into and equated with the Christian festival of Christmas. The earliest references to Yule are by way of indigenous Germanic month names (Ærra Jéola (Before Yule) or Jiuli and Æftera Jéola(After Yule). Scholars have connected the celebration to the Wild Hunt, the god Odin and the pagan Anglo-Saxon Modranicht." http://en.wikipedia.org/wiki/Yule

    The return of the sun to the northern latitudes was a big deal for our ancestors. They brought greenery (like evergreen trees and branches into their homes), to remind them of the cycle of everlasting life. That's where the X-mas tree tradition began. It makes a lot more sense to me than shopping til you drop.

    1222-solstice_full_600.jpg
  20. AFCFS

    AFCFS Senior Member

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    Number one, in all things beautiful if, and only if, you have money to pay for it. As for death by drones, that would be wishful thinking if I went that way, and not really how society likes to take care of business. They don't like the sick and destitute, but they also do not want that flavor of life to taint the marvelous fountain and feast that is presented to those who taste no ill. We are upsetting to them, but so is the civility needed to view human suffering. So if we get to the point of hopeless destitution, there is the bureaucratic rug of "social services" that exists to sweep us under and wound up in its tangled fabric. As I look at these things, I feel that I have been lied to my entire life.

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