Yes, exactly,
@A.B. In fact, any brain-based model of ME/CFS, irrespective of its sophistication, can lead us in only one direction: psychological/behavioural treatment. Or exercise-based approaches. This includes the fancier ones like Neil Harrison's. Harrison's model has been applied to other "unexplained" illnesses, and what came out of those was a recommendation for therapy and physio.
I'm not quite clear on this logic. What about BSE or brain cancer? Or Lyme encephalomyelitis? Psych/behavioral models are as useless in these as wishing on fairy dust. If ME involves chronic low grade brain inflammation that is sourced in some unknown pathogen in the brain...What then?
I have no tolerance for this BPS shit, but could we not be dealing with a primarily neurological disease that manifests as neuro-immune disorder?
I do appreciate how this concept can be (and already is) used against us by unscrupulous groups, but if there IS a stealth pathogen taking root in our brains, then we need to confront that, identify and own our disease, and dismiss attempts at BPS or similar manipulations.
If it is all immune-centric, I'm good with that, too. I am after the truth, as we all are. I'm just saying simply by our illness being rooted in the brain, doesn't necessarily make it a brain dysfunction, and doesn't mean we have to concede an inch to BPS peddlers.
It can mean it is a disease located in the brain, and we have to find a way to eradicate the pathogen, or mitigate its damage.